Sjögren's Foundation

Sjögren's Foundation Committed to Conquering and Improving Lives through Education, Support, Advocacy, Research Let's treat everyone with respect.
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Sjögren’s (“SHOW-grins”) is a systemic autoimmune disease that affects the entire body. Along with symptoms of extensive dryness, other serious complications include profound fatigue, chronic pain, major organ involvement, neuropathies, and lymphomas. As a systemic disease, affecting the entire body, symptoms may remain steady or worsen overtime. There is no one single progression of the disease a

nd this can make it challenging for patients and their physicians. While some people experience mild discomfort, others suffer debilitating symptoms that greatly impair their functioning. Early diagnosis and proper treatments are important as they may prevent serious complications and greatly improve a patient's quality of life. About half of the time Sjögren's occurs alone, and the other half it occurs in the presence of another autoimmune connective tissue disease such as Rheumatoid Arthritis, Lupus, or Scleroderma. In addition, Sjögren's is often misrepresented as a rare disease, however it is estimated that there are four million Americans living with this disease, making it one of the most prevalent autoimmune diseases. The Sjögren’s Foundation is proud to be the first and only national non-profit health organization leading the charge to conquer Sjögren’s. While focused on increasing research, education and awareness for this disease, the Foundation works on behalf of all Sjögren’s patients and is dedicated to conquering the complexities of this life-altering and debilitating disease. The Foundation is committed to supporting all Sjögren’s patients while acknowledging the truly complex nature of this disease. Our initiatives, programs and overall efforts are first and foremost started, advanced and expanded, with the Sjögren's patient in mind. With so many people living with questions about their disease and concerned about their disease progressing, we want to make a difference for patients and provide them with answers as well as a sense of hope, now, and for the future. The Foundation brings the voice of patients to the highest levels – to the halls of Congress, primary agencies of the United States Government, leading medical centers and prominent research institutions. We help patients tell their stories to put a human face on Sjögren's, and address the misunderstanding of this complex disease. The Foundation also serves as the lead organization for Sjögren’s worldwide. The Foundation reserves the right to remove without notice any comments, accounts, photos, videos or graphics that are unlawful, obscene, spam or otherwise offensive. This includes but is not limited to advertising or spam, vulgar or disturbing language or images, posts that may violate the rights of others, are disrespectful to any community member, go against the Facebook Statement of Rights and Responsibilities and Community Standards, or any other Facebook term or policy. Community members that repeatedly violate these guidelines will be blocked. Additionally:
Be Kind and Courteous
We're all in this together to create a welcoming environment. Healthy debates are natural, but kindness is required. No Hate Speech or Bullying
Make sure everyone feels safe. Bullying of any kind isn't allowed, and degrading comments about things like race, religion, culture, sexual orientation, gender or identity will not be tolerated. No Promotions or Spam
Give more than you take to this community. Self-promotion, spam and irrelevant links aren't allowed. Respect Everyone's Privacy
Being part of this community requires mutual trust. Authentic, expressive discussions make communities great, but may also be sensitive and private. What's shared in the community should stay in the community.

 : When you meet with your doctor, bring two copies of your list of questions to the appointment, one for you and one fo...
05/26/2026

: When you meet with your doctor, bring two copies of your list of questions to the appointment, one for you and one for your doctor.

We encourage you to share this tip on your page and comment below with your experience(s).

 : Avoid chemicals and products that can dry your nails. Nail polish, nail polish remover, artificial nails, and nail ha...
05/19/2026

: Avoid chemicals and products that can dry your nails. Nail polish, nail polish remover, artificial nails, and nail hardeners can dry out your nails and cause them to break. If you do wear nail polish, look for organic or formaldehyde free products, and be sure to moisturize your hands and nails well after removing the polish.

We encourage you to share this tip on your page and comment below with your experience(s).

The 2026 Spring Walk for Sjögren's – Your Place, Your Pace!  is happening TOMORROW, May 16 at 12pm ET / 11am CT / 9am PT...
05/15/2026

The 2026 Spring Walk for Sjögren's – Your Place, Your Pace! is happening TOMORROW, May 16 at 12pm ET / 11am CT / 9am PT via zoom, and we’d love to see you there!

Together, we’ll raise awareness and critical funds to support research, education, and resources for those living with Sjögren’s. Every step helps move us closer to better treatment, and one day, a cure.

Register, donate, or learn more by clicking the following link: https://walkforsjogrens.org/Spring

 : When you meet with your doctor, bring two copies of your list of questions to the appointment, one for you and one fo...
05/12/2026

: When you meet with your doctor, bring two copies of your list of questions to the appointment, one for you and one for your doctor.

We encourage you to share this tip on your page and comment below with your experience(s).

Thank you to everyone who joined us at the Philadelphia Walk for Sjögren’s! 💙Your support, energy, and presence made a r...
05/11/2026

Thank you to everyone who joined us at the Philadelphia Walk for Sjögren’s! 💙

Your support, energy, and presence made a real impact. Every step taken helps raise awareness of Sjögren’s and strengthens our ability to support patients, advance research, and drive change. With your support, we were able to raise over $80,000!

We’re so grateful to our walkers, volunteers, sponsors, and everyone who showed up for this community. Together, we’re making sure no one faces Sjögren’s alone.

www.walkforsjogrens.org/philadelphia

A special thanks to our national presenting sponsor, Novartis, national wellness sponsor, Johnson & Johnson, and national diamond sponsor, Amgen.

The Dry Eye Foundation is hosting a Dry Eye Advocacy Day in Washington DC from July 16-17, 2026. All ocular surface dise...
05/08/2026

The Dry Eye Foundation is hosting a Dry Eye Advocacy Day in Washington DC from July 16-17, 2026. All ocular surface disease patients are welcome and travel scholarship to come to DC will be available! You can join an info session on 5/28 or 6/18 to learn more about how to prepare and what to expect. Our info session will include a presentation on logistics, time to speak with a participant in last year’s Advocacy Day, and plenty of time for Q&A.

You can learn more and register at dryeyefoundation.org/dc-2026.

 : Apply a warm, wet washcloth or a microwaveable mask to the closed eyes at bedtime and upon awakening for 5 minutes or...
05/05/2026

: Apply a warm, wet washcloth or a microwaveable mask to the closed eyes at bedtime and upon awakening for 5 minutes or more to stimulate the oil glands in the eyelids.

We encourage you to share this tip on your page and comment below with your experience(s).

More than 6,300 people in our community shared what it’s really like to live with Sjögren’s and the message is clear:Sjö...
05/04/2026

More than 6,300 people in our community shared what it’s really like to live with Sjögren’s and the message is clear:

Sjögren’s disease is complex, heterogeneous, and presents relentless challenges to those living with the disease.

Here are just a few of the takeaways:
🔵 Symptoms are constant and wide-ranging. Dryness, fatigue, trouble sleeping, brain fog, and pain aren’t occasional, they’re part of everyday life.
🔵 Fatigue is especially debilitating, often disrupting the ability to function, stay engaged in daily activities, and maintain social commitments.
🔵 Sjögren’s impacts sexual health, affecting relationships and sexual function.

You can explore the full summary, download a printable version, and share it with your doctors and loved ones here: https://sjogrens.org/living-with-sjogrens/living-with-sjogrensr-patient-survey

Address

10701 Parkridge Boulevard , Suite 170
Reston, VA
20191

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