02/03/2021
Written from the heart of a precious Mama, K. S. James
6:46 am “Mom! Wake up! I know what day it is! It’s my birthday! I’m not John, the boy, anymore; I’m John, the MAN!”
How can this have happened so quickly? My heart is deeply conflicted at the thought of John James becoming an “adult”. Autism doesn’t go away just because a person grows up, however, in many unfortunate instances, the compassion and understanding with which people view a child with autism aren’t always afforded to an adult with autism. There will be many legalities to be worked out in the coming days, some foreseen and some not. He wants to drive, but can’t drive due to seizures. He wants to date, but it would take a girl who wants to hear about trucks and trains, enjoys reading antique car magazines, loves historical documentaries, and doesn’t mind reminding him to brush his teeth. He wants a job, but would need a facilitator and an employer with the patience of Job. He wants to “hang out” with peers his age, but they’re all busy driving to work, dating, and doing “normal” young adult things. In all honesty, I’ve both dreaded and looked forward to this day for many years now.
I cannot be sad, though, because 18 years ago today at 2:34 pm God gave me a new pair of eyes through which to "see" the world. John’s heart, having stopped beating before birth, has beat every day since, pulsing with a profound purpose of life. I have always been and will continue to be invariably humbled to call myself his mom.
On February 3, 2003, our family welcomed a precious gift that redefined our lives. John arrived, not with a breath-filled first cry, but lifeless and blue. His unexpected arrival directed us on a journey of progress mirrored with setbacks, where the miles have been measured with conjectural patience and incalculable love. We have found ourselves quite often lost, yet maintaining focus on our goal destination—productive adult.
We have met many other sojourners along our way, only to be diverted onto an alternate course, feeling isolated in our beleaguered travels.
We have learned to celebrate true accomplishment for the incredible child with which we are blessed and not to mourn the dreams for a child we only imagined having had.
We celebrate accomplishments, which to the world may look like pebbles, but to John are huge boulders waiting to be climbed by someone with his courageous endurance.
Among the countless indelible lessons learned on our pilgrimage and what I know beyond absolution is this:
With individual struggle comes strength..... For all of us.
I once read that when God wants to make a change in the world, He doesn’t send a thundering army, He simply sends a precious new baby. 18 years ago today, God changed our world with a beautiful baby boy. Born without a heartbeat, John knew death before birth, but has brought life into our small family and each person he has encountered every day since.
Today we celebrate. Today we remember the blessing of life. Happy Birthday, John! 🥳🍰
Written from the heart of a precious Mama, K. S. James 6:46 am “ Mom! Wake up! I know what day it is! It’s my birthday! I’m not John, the boy, anymore; I’m John, the MAN! ” How can this have happened so quickly? My heart is deeply conflicted at the thought of John James becoming an “ adu...