NF Tumor Foundation

04/24/2024

https://www.usatoday.com/story/life/humankind/2024/03/27/make-a-wish-foundation-wish-to-be-a-zookeeper/73093091007/

Dale Zimmerman made a wish to be a zookeeper for a day. At Zoo Miami, he got to feed giraffes, meet his favorite animal, the rhino, and learn what it takes to care for them.

04/17/2024

https://medicine.wustl.edu/news/epilepsy-drug-prevents-brain-tumors-in-mice-with-nf1/

Study lays groundwork for clinical trial aimed at preventing brain tumors in children with NF1

03/05/2024

https://www.sinardaily.my/article/215943/culture/health/the-unexpected-journey-of-raising-a-child-with-neurofibromatosis

Amidst the fragile moments of motherhood, life took its twists and turns for Dr Nurul Izzaty Hassan. It was a somewhat smooth pregnancy when she was expecting her youngest, but...

03/05/2024

https://www.beaconjournal.com/story/news/2024/03/04/cleveland-cavaliers-nick-gilbert-death-neurofibromatosis/72838390007/

The late Nick Gilbert, a beloved member of the Cleveland Cavaliers' family, took his place in the rafters during Sunday's game.

01/05/2024

Hi All,

Beginning in, Brainy Camps will collaborate with Melwood a 501-c3 not-for-profit organization dedicated to serving our community and fully aligned with our mission to help youth with chronic health conditions live well and reach their potential. We are calling this new collaboration Camp Accomplish

11/11/2023

November, 2023
Dear Friends,
Finally, we are out in public again. Our organization took part in two events this past summer. We plan to do more next year.
Of course, we are still answering inquiries, providing NF information, taking part in NF studies, and donating to Camp New Friends. Our members have met with several hospitals again this year.
While we are not as large or as active as we once were, we keep up to date and endeavor to answer all inquiries within 24 hours. We provide NF information to those who have not been able to find it elsewhere.
One of our members just met the mother of an NF-affected girl. They didn’t even know there was an NF organization. If anyone is ever able to provide NF information this way, please do so.
Donations of time, money, and support are greatly appreciated. We sincerely thank all those who have donated.
Thank You,
John D. Dobson
Executive Director
Congratulations to Dr. Jashiri Blakeley, Johns Hopkins Neurology- Neurofibromatosis on being named one of Baltimore Magazine’s Top Doctors.

Home   We’ve been serving the community since 1979, and now we’ve gone global. This is the new NF Tumor Foundation! Get Involved Keep in touch – The NF Tumor Foundation is only effective when we work together, supporting each other and sharing our knowledge. Participate in events – whether ...

09/09/2023

We will be at Babcock Presbyterian Church today in Towson Md. til 2. Come say hi.

07/07/2023

Tomorrow at St. Luke's Evangelical Lutheran Church on Harford Rd. We are having a table in the Courtyard. From 8-2

01/23/2023

Mark your Calendars. Cupid's Undie Run 2/18. Flaunt your favorite un**es to help end NF. Lucky's Tavern 12-4 pm. $40.

Cupid’s Undie Run - Fundraising to !

09/05/2022

https://www.nst.com.my/lifestyle/sunday-vibes/2022/09/828229/neurofibromatosis-sufferer-refuses-let-his-condition-deter-him

SLOWLY, he raises his hand to show me an unusually large lesion on his right hand. Even through my laptop screen, I can see so clearly what appears to be a large and angry lump on Muhammad Firdaus Omar’s hand. He tries to bend his fingers to form a fist but manages only to slightly curl his finger...

07/07/2022

2b Clinical Study For NF1 Patients with Cutaneous Neurofibromas

Who Can Participate: Ages 18+, Diagnosed with neurofibromatosis type 1, have 10 clinically diagnosed cNF's, 2 cutaneous neurofibromas on face.

Objective: The purpose of this study is to test the safety and effectiveness of 2 concentrations of NFX-179 gel compared with placebo gel in reducing the appearance of cutaneous neurofibromas (cNFs) in subjects with Neurofibromatosis Type 1 (NF1).

Contact: To see if you qualify for this investigational study, please fill out this form herehttp://patients.nflectionrx.com

05/02/2022

https://www.clactonandfrintongazette.co.uk/news/20101719.clacton-town-hall-light-raise-awareness-disorder/

A TOWN hall is set to light up in blue to mark a day global day bringing awareness to a genetic disorder.