08/10/2026
On Thursday, Aug. 6, we learned of the sudden passing of Susan Dooha. She was the Executive Director of Center for Independence of the Disabled New York for nearly 20 years, retiring in 2021. Susan fiercely advocated to address healthcare disparities for people with disabilities, and served as NYAIL Board Chair for many years. Susan co-founded Medicaid Matters NY, along with New Yorkers for Accessible Health Coverage, helping to build coalitions strengthening the disability community and protecting long-term services and supports. Susan was inducted into the New York State Independent Living Council, Inc. Disability Rights Hall of Fame in 2022.
Lindsay Miller, NYAIL's Executive Director said: "Susan brought intellect, passion, and fearless advocacy to every discussion. You could put her in front of a microphone with no notice, which I often did, and she would speak with conviction and expertise about the health disparities faced by people with disabilities and our ongoing fight for disability rights, always inspiring those around her to take action. She spearheaded several lawsuits in New York City to enforce the rights of people with disabilities in the areas of emergency preparedness, voting accessibility, curb cuts, accessible subways, and accessible public accommodations such as homeless shelters and libraries.Susan leaves behind an extraordinary legacy. Our thoughts are with her family, friends, former colleagues, and all those she touched throughout her lifetime."
Rest in power, Susan!
