Cystic Fibrosis Foundation - Michigan Chapter

Cystic Fibrosis Foundation - Michigan Chapter Welcome to the official page of the Cystic Fibrosis Foundation Michigan Chapter- serving Michigan and Northwest Ohio! The Cystic Fibrosis Foundation is committed to finding new therapies and ultimately a cure for CF.
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Operating as usual

Today is Fundraising Friday, and we want YOU to help us crush our fundraising goals for Great Strides and Cycle for Life...
06/18/2021

Today is Fundraising Friday, and we want YOU to help us crush our fundraising goals for Great Strides and Cycle for Life by participating in our 65 Roses Challenge this summer!

To get started, simply register for Great Strides or Cycle for Life using the links below!
Already registered?! Great! Use your fundraising page to continue raising funds throughout our 65 Roses Challenge! There are countless ways to participate in our 65 Roses Challenge this summer, and it’s never too late to join us!

Get started today:
Great Strides - fightcf.cff.org/greatstrides
Cycle for Life - fightcf.cff.org/cyclemichigan

Today is Fundraising Friday, and we want YOU to help us crush our fundraising goals for Great Strides and Cycle for Life by participating in our 65 Roses Challenge this summer!

To get started, simply register for Great Strides or Cycle for Life using the links below!
Already registered?! Great! Use your fundraising page to continue raising funds throughout our 65 Roses Challenge! There are countless ways to participate in our 65 Roses Challenge this summer, and it’s never too late to join us!

Get started today:
Great Strides - fightcf.cff.org/greatstrides
Cycle for Life - fightcf.cff.org/cyclemichigan

Are you an adult living with cystic fibrosis who loves to express yourself creatively? Submit your original design for o...
06/18/2021

Are you an adult living with cystic fibrosis who loves to express yourself creatively? Submit your original design for our BreatheCon swag contest using the theme of commUNITY.

Not sure where to start? We’ve got ideas to get the creative juices flowing.
What does creativity mean to you?
How does creativity and expression through art help you?
Illustrate how you feel when you're surrounded by your support system, family, friends, and the CF community.
How does your creativity encourage or inspire you to connect with the community?

Submissions are accepted now through June 30th! Get started by clicking the link below:
http://on.cff.org/BreatheConswag2021

Are you an adult living with cystic fibrosis who loves to express yourself creatively? Submit your original design for our BreatheCon swag contest using the theme of commUNITY.

Not sure where to start? We’ve got ideas to get the creative juices flowing.
What does creativity mean to you?
How does creativity and expression through art help you?
Illustrate how you feel when you're surrounded by your support system, family, friends, and the CF community.
How does your creativity encourage or inspire you to connect with the community?

Submissions are accepted now through June 30th! Get started by clicking the link below:
http://on.cff.org/BreatheConswag2021

June is National Great Outdoors month!There are countless ways to participate in our 65 Roses Challenge this summer, and...
06/16/2021

June is National Great Outdoors month!

There are countless ways to participate in our 65 Roses Challenge this summer, and getting outside and enjoying the beautiful weather is just one of them! Whether that’s running, walking your dog, biking, hiking, rollerblading, skateboarding, gardening, or any other outdoor activity, we encourage you to participate in our 65 Roses Challenge - going on now through August 8th!

If you haven't yet joined the 65 Roses Challenge, don't worry! It’s never too late to join us!

Register today using the links below:
Great Strides - fightcf.cff.org/greatstrides
Cycle for Life - fightcf.cff.org/cyclemichigan

June is National Great Outdoors month!

There are countless ways to participate in our 65 Roses Challenge this summer, and getting outside and enjoying the beautiful weather is just one of them! Whether that’s running, walking your dog, biking, hiking, rollerblading, skateboarding, gardening, or any other outdoor activity, we encourage you to participate in our 65 Roses Challenge - going on now through August 8th!

If you haven't yet joined the 65 Roses Challenge, don't worry! It’s never too late to join us!

Register today using the links below:
Great Strides - fightcf.cff.org/greatstrides
Cycle for Life - fightcf.cff.org/cyclemichigan

Thank you to our newest Great Strides sponsor, STMicroelectronics! We are so thankful for your support!All of our amazin...
06/14/2021

Thank you to our newest Great Strides sponsor, STMicroelectronics! We are so thankful for your support!

All of our amazing sponsors make a huge impact in our region every day. Thank you!

Thank you to our newest Great Strides sponsor, STMicroelectronics! We are so thankful for your support!

All of our amazing sponsors make a huge impact in our region every day. Thank you!

We’re bouncing into the weekend! If you haven't yet joined the 65 Roses Challenge, don't worry! It’s never too late to j...
06/11/2021

We’re bouncing into the weekend!
If you haven't yet joined the 65 Roses Challenge, don't worry! It’s never too late to join us!

Register today using the links below:
Great Strides - fightcf.cff.org/greatstrides
Cycle for Life - fightcf.cff.org/cyclemichigan

We’re bouncing into the weekend!
If you haven't yet joined the 65 Roses Challenge, don't worry! It’s never too late to join us!

Register today using the links below:
Great Strides - fightcf.cff.org/greatstrides
Cycle for Life - fightcf.cff.org/cyclemichigan

As was announced yesterday, the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaf...
06/10/2021

As was announced yesterday, the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaftor/ivacaftor) for children with cystic fibrosis ages 6 to 11 who have at least one copy of the F508del mutation or one copy of certain rare mutations.

With this approval, approximately 1,500 children will be eligible for a CFTR modulator for the first time. If you’re a parent or caregiver to a child with CF, join us TONIGHT for a community webinar from 7-8 p.m. ET, to have your top questions answered by experts from the Cystic Fibrosis Foundation. All those who register will receive a recording of the event.

Save your seat via the link below:
https://cff.zoom.us/webinar/register/WN_7zJwrDRsRJqusnF9zeO7CA

As was announced yesterday, the U.S. Food and Drug Administration has approved the use of Trikafta® (elexacaftor/tezacaftor/ivacaftor) for children with cystic fibrosis ages 6 to 11 who have at least one copy of the F508del mutation or one copy of certain rare mutations.

With this approval, approximately 1,500 children will be eligible for a CFTR modulator for the first time. If you’re a parent or caregiver to a child with CF, join us TONIGHT for a community webinar from 7-8 p.m. ET, to have your top questions answered by experts from the Cystic Fibrosis Foundation. All those who register will receive a recording of the event.

Save your seat via the link below:
https://cff.zoom.us/webinar/register/WN_7zJwrDRsRJqusnF9zeO7CA

The U.S. Food and Drug Administration has approved the use of Trikafta for children with cystic fibrosis ages 6 through ...
06/09/2021

The U.S. Food and Drug Administration has approved the use of Trikafta for children with cystic fibrosis ages 6 through 11 who have at least one copy of the F508del mutation or one copy of certain mutations. With this approval, approximately 1,500 children will be eligible for a CFTR modulator for the first time.

“We have seen the transformative effect that Trikafta can have on older children and adults, and we are excited by the prospect that this medicine may slow or prevent the progression of the disease at an early age and stave off the most common complications of CF before they start,” said Michael P. Boyle, MD, president and CEO of the Foundation.

Please see the news story below for more information:
https://www.cff.org/News/News-Archive/2021/FDA-Approves-Trikafta-for-Children-Ages-6-Through-11-With-Certain-Mutations/?sf145466435=1&fbclid=IwAR3V10WpAycNp38pGnf-Hm9JxCUzgQty2NXs-kFf00Y7wdCcxOn-7GVVtUw

The U.S. Food and Drug Administration has approved the use of Trikafta for children with cystic fibrosis ages 6 through 11 who have at least one copy of the F508del mutation or one copy of certain mutations. With this approval, approximately 1,500 children will be eligible for a CFTR modulator for the first time.

“We have seen the transformative effect that Trikafta can have on older children and adults, and we are excited by the prospect that this medicine may slow or prevent the progression of the disease at an early age and stave off the most common complications of CF before they start,” said Michael P. Boyle, MD, president and CEO of the Foundation.

Please see the news story below for more information:
https://www.cff.org/News/News-Archive/2021/FDA-Approves-Trikafta-for-Children-Ages-6-Through-11-With-Certain-Mutations/?sf145466435=1&fbclid=IwAR3V10WpAycNp38pGnf-Hm9JxCUzgQty2NXs-kFf00Y7wdCcxOn-7GVVtUw

06/08/2021
Thank You to our Incredible Cycle Teams!

We want to give a big shoutout to all of our incredible Cycle for Life teams who have collectively raised over $6,500 in ONE WEEK as a part of our 65 Roses Challenge! Thank you Coffee Strong, Team Meagan, Alongside El, and Winnie's Riders for your incredible fundraising efforts! YOU ARE AMAZING!

Did you know that by participating in our 65 Roses Challenge this summer, you can challenge yourself to complete ANY act...
06/07/2021

Did you know that by participating in our 65 Roses Challenge this summer, you can challenge yourself to complete ANY activity for 65 days?!

This year, our challenge is not limited to walking, running, or biking. Starting June 5th, simply set a goal, challenge yourself for 65 days, and fundraise along the way! You can hike, create art, dance, meditate, cook, read, or challenge yourself to complete any activity for 65 days!

Last year, as a part of our 65 Roses Challenge, Opal cooked a new dish every day to help raise awareness for her younger brother, Fisher, who has cystic fibrosis.
This creative, fun-loving, self-proclaimed foodie got creative with our 65 Roses Challenge, and personalized it to her interests.

Opal's mom, Sarah, created a page to log her efforts, and posted daily updates of Opal's cooking adventures. Sarah also used the Facebook group to post daily facts, statistics, and personal stories about life with CF.

Opal is proof that there are countless creative ways to participate in, and fundraise for our 65 Roses Challenge!

Join Opal by taking part in the challenge!
Get started today by registering for Great Strides or Cycle for Life at fightcf.cff.org!
Already registered?! Great! Regardless of the type of activity you choose, simply use your participant page to fundraise along the way.

Did you know that by participating in our 65 Roses Challenge this summer, you can challenge yourself to complete ANY activity for 65 days?!

This year, our challenge is not limited to walking, running, or biking. Starting June 5th, simply set a goal, challenge yourself for 65 days, and fundraise along the way! You can hike, create art, dance, meditate, cook, read, or challenge yourself to complete any activity for 65 days!

Last year, as a part of our 65 Roses Challenge, Opal cooked a new dish every day to help raise awareness for her younger brother, Fisher, who has cystic fibrosis.
This creative, fun-loving, self-proclaimed foodie got creative with our 65 Roses Challenge, and personalized it to her interests.

Opal's mom, Sarah, created a page to log her efforts, and posted daily updates of Opal's cooking adventures. Sarah also used the Facebook group to post daily facts, statistics, and personal stories about life with CF.

Opal is proof that there are countless creative ways to participate in, and fundraise for our 65 Roses Challenge!

Join Opal by taking part in the challenge!
Get started today by registering for Great Strides or Cycle for Life at fightcf.cff.org!
Already registered?! Great! Regardless of the type of activity you choose, simply use your participant page to fundraise along the way.

Will you be joining our 65 Roses Challenge this summer?! If so, be sure to spread the word to all of your Facebook frien...
06/05/2021

Will you be joining our 65 Roses Challenge this summer?!

If so, be sure to spread the word to all of your Facebook friends by using one of these 65 Roses Challenge Facebook cover photos!
This will let your Facebook friends know that you’re participating in our 65 Roses Challenge, and hopefully encourage them to join you!

Let’s crush these next 65 days and get one step closer to making CF stand for Cure Found!

It's 65 Roses Day. Today marks the first day of our 65 Roses Challenge!For the next 65 days, we challenge YOU to set a d...
06/05/2021

It's 65 Roses Day.
Today marks the first day of our 65 Roses Challenge!

For the next 65 days, we challenge YOU to set a daily goal and fundraise along the way! You can walk, run, bike, hike, create art, dance, meditate, cook, read, or challenge yourself to complete any activity for 65 days!

Interested in joining the challenge?! It's as easy as 1…2…3!

1. Start by registering for Great Strides or Cycle for Life using the links below! Already registered?! Great! Regardless of the type of activity you choose, simply use your participant page to fundraise along the way.
Great Strides: fightcf.cff.org/greatstrides
Cycle for Life: fightcf.cff.org/cyclemichigan

2. Set a goal for yourself for 65 days. The challenge begins TODAY, which is 65 Roses Day, and runs until August 8th!

3. Track your progress on our Fight CF app. If you’d like, you can submit your progress using the Formstack link below, although this is not necessary to participate:
https://afasignup.formstack.com/.../65_roses_challenge_2021

It's 65 Roses Day.
Today marks the first day of our 65 Roses Challenge!

For the next 65 days, we challenge YOU to set a daily goal and fundraise along the way! You can walk, run, bike, hike, create art, dance, meditate, cook, read, or challenge yourself to complete any activity for 65 days!

Interested in joining the challenge?! It's as easy as 1…2…3!

1. Start by registering for Great Strides or Cycle for Life using the links below! Already registered?! Great! Regardless of the type of activity you choose, simply use your participant page to fundraise along the way.
Great Strides: fightcf.cff.org/greatstrides
Cycle for Life: fightcf.cff.org/cyclemichigan

2. Set a goal for yourself for 65 days. The challenge begins TODAY, which is 65 Roses Day, and runs until August 8th!

3. Track your progress on our Fight CF app. If you’d like, you can submit your progress using the Formstack link below, although this is not necessary to participate:
https://afasignup.formstack.com/.../65_roses_challenge_2021

It's 65 Roses Day. “65 Roses” is a term children have used for decades to describe their disease and inspire hope. We ce...
06/05/2021

It's 65 Roses Day.

“65 Roses” is a term children have used for decades to describe their disease and inspire hope. We celebrate 65 Roses Day each year on June 5 to honor and celebrate those who have helped pave the way for better treatments and care for cystic fibrosis.

You can help us make dreams a reality by becoming a monthly donor today.

Give today: https://fightcf.cff.org/site/Donation2?df_id=1620&1620.donation=form1&s_chapter=1039

06/04/2021

Samantha and Ethan Fuller are pumping iron and riding the elliptical for the 65 Roses Challenge! Put on your neon sweatbands and join them by registering a team for either Great Strides - fightcf.cff.org/greatstrides or Cycle for Life – fightcf.cff.org/cyclemichigan.

06/04/2021
Join Biancca for our 65 Roses Challenge!

Biancca and her family are representing Lorenzo’s Lung Walkers. They are embracing the 65 Roses Challenge by planning out 65 days of family night activities such as board games and walking the dog together!

You can join in on the family fun too by selecting this as your activity of choice for the 65 Roses Challenge! Use your participant page using the links below to fundraise along the way:
🌟 Cycle for Life - fightcf.cff.org/cyclemichigan
🌟 Great Strides - fightcf.cff.org/greatstrides

06/04/2021
Join Renee for our 65 Roses Challenge!

Meet Renee Miller, another fantastic member of our 65 Roses Challenge Task Force! Renee will be running for her two adorable daughters, Clara and Maggie, throughout the challenge.

Run alongside Renee and so many others by registering a team for either Great Strides - fightcf.cff.org/greatstrides or Cycle for Life – fightcf.cff.org/cyclemichigan, if you haven’t already signed up!

06/04/2021
Join Justin for our 65 Roses Challenge!

Introducing Justin Tenyer, Co-Chair of our 65 Roses Task Force! Justin is a cycle enthusiast and will be biking for his wife throughout the 65 Roses Challenge.

Want to join? Start by registering for Cycle for Life or Great Strides using the links below! Already registered?! Great! Regardless of the type of activity you choose, simply use your participant page to fundraise along the way.
🌟 Cycle for Life - fightcf.cff.org/cyclemichigan
🌟 Great Strides - fightcf.cff.org/greatstrides

06/04/2021
Join Julie for the 65 Roses Challenge!

Meet Julie Hawkins, CF Fighter and Co-Chair of our 65 Roses Task Force! She is gearing up to kick off the 65 Roses Challenge TOMORROW. She will be walking each day for 65 days straight.
Join Julie by walking or any other activity of your choice by registering a team for either Great Strides - fightcf.cff.org/greatstrides or Cycle for Life – fightcf.cff.org/cyclemichigan, if you’re not already signed up!

There is just ONE DAY left until the start of our 65 Roses Challenge! Will you be joining us?!Starting TOMORROW, simply ...
06/04/2021

There is just ONE DAY left until the start of our 65 Roses Challenge! Will you be joining us?!

Starting TOMORROW, simply set a goal, challenge yourself for 65 days, and fundraise along the way! You can walk, run, bike, hike, create art, dance, meditate, cook, read, or challenge yourself to complete any activity for 65 days!

Interested in joining the challenge?! It's as easy as 1…2…3!

1. Start by registering for Great Strides or Cycle for Life using the links below! Already registered?! Great! Regardless of the type of activity you choose, simply use your participant page to fundraise along the way.
Great Strides: fightcf.cff.org/greatstrides
Cycle for Life: fightcf.cff.org/cyclemichigan

2. Set a goal for yourself for 65 days. The challenge begins on June 5, which is 65 Roses Day.

3. Track your progress on our Fight CF app. If you’d like, you can submit your progress using the Formstack link below, although this is not necessary to participate:
https://afasignup.formstack.com/.../65_roses_challenge_2021

There is just ONE DAY left until the start of our 65 Roses Challenge! Will you be joining us?!

Starting TOMORROW, simply set a goal, challenge yourself for 65 days, and fundraise along the way! You can walk, run, bike, hike, create art, dance, meditate, cook, read, or challenge yourself to complete any activity for 65 days!

Interested in joining the challenge?! It's as easy as 1…2…3!

1. Start by registering for Great Strides or Cycle for Life using the links below! Already registered?! Great! Regardless of the type of activity you choose, simply use your participant page to fundraise along the way.
Great Strides: fightcf.cff.org/greatstrides
Cycle for Life: fightcf.cff.org/cyclemichigan

2. Set a goal for yourself for 65 days. The challenge begins on June 5, which is 65 Roses Day.

3. Track your progress on our Fight CF app. If you’d like, you can submit your progress using the Formstack link below, although this is not necessary to participate:
https://afasignup.formstack.com/.../65_roses_challenge_2021

Address

2265 Livernois Suite 410
Troy, MI
48083

General information

Posting Policy for the Cystic Fibrosis Foundation The Cystic Fibrosis Foundation – Michigan - Northwest Ohio Chapter welcomes participation on our page and we encourage you to interact with us often. It is our goal to provide those in the CF community an opportunity to learn more about the local events and activities of our chapter. Individual medical questions are best answered by your CF doctor. Please use caution when searching for health information online, and always consult your doctor before making changes to your or your child’s treatment regimen. You should not rely on information posted on Facebook to suggest a course of treatment for any medical condition nor should you disregard medical advice from your doctor or deviate from any prescribed treatment program because of what you read on Facebook. Please note: giving away, sharing or selling medication or medical equipment that requires a prescription is against the law. To protect your own privacy and the privacy of others, please do not include phone numbers, mailing addresses or e-mail addresses in your posting. You participate at your own risk, taking personal responsibility for your comments, your username and any information provided. This is a public site and visitors do not have to be a member of Facebook to view comments posted to this page. In accordance with Facebook’s rules, users must be 13 years of age or older to participate on this page. Posts made by those identifying themselves as younger than 13 will be deleted. Please note that posts containing personal attacks, profanity, or illegal material are prohibited. In addition, multiple postings of the same content may be construed as spam and will be deleted. We reserve the right, at our discretion, to remove any post that is deemed unintelligible or irrelevant, or to block a user's privilege to post to our page. The appearance of external links on this page does not constitute official endorsement on behalf of the Cystic Fibrosis Foundation. All content posted by the Cystic Fibrosis Foundation is the property of the Cystic Fibrosis Foundation and is subject to copyright laws. For more information, please visit http://www.cff.org/legal_terms_and_conditions/#Policy_on_Intellectual_Property. The Cystic Fibrosis Foundation is a 501(c)(3) tax-exempt organization and therefore prohibited from directly or indirectly participating in any political campaign. In accordance with the Internal Revenue Service regulations, any posts determined to be political activity will be removed.

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Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

(248) 269-8759

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Are you a parent raising a kiddo with CF? Please consider participating in my doctoral dissertation research! This survey aims to understand why caregivers in the CF community have anxiety and depression rates 2-3 times higher than the general population. Take the survey and share your thoughts: https://cystic-fibrosis.com/?p=2542 If you are interested in this survey and contributing your voice to the conversation on caregiver mental health, please participate! The study is closing on Sunday, August 30!
**CF SURVEY: Receive: $150 - $250 for CF Interview and Focus Group Opportunity for patients and caregivers in the cystic fibrosis community using Pulmozyme in their treatment plan.** **Apply here:** [https://gigs.savvy.coop/pulmozyme/?r=shans](https://gigs.savvy.coop/pulmozyme/?r=shans) Description: The goal of the research study is to help develop better communications and understand patient/family needs for a pharmaceutical company. If we believe that you or your child may qualify, we'll give you a link to a more in-depth screener. **PLEASE READ REQUIREMENTS BELOW** **REQUIREMENTS FOR PATIENTS:** * Must be diagnosed with Cystic Fibrosis (CF) * Must be currently using Pulmozyme as part of their CF treatment plan * 18-24 years old * Nationwide * Cannot be from MN, VT or MA * Patients must use at least one (1) social media platform regularly **REQUIREMENTS FOR CAREGIVERS:** * All respondents must be parents/guardians of a child(ren) living with Cystic Fibrosis (CF) * Child(ren) must be at least 16; If child(ren) is over 24, that will be determined on a case-by-case basis * Child(ren) must be currently using Pulmozyme as part of their CF treatment plan * Child(ren) must have less than three (3) hospitalizations in the last 12 months * Child(ren) must use at least one (1) social media platform regularly * Cannot be a paid/hired caregiver * MUST be directly involved with the child's care and help make decisions on treatments/medications * Nationwide * Cannot be from MN, VT or MA **Details:** * Focus group * In-depth interview * From home **Receive: $150 - $250** Fill out the form at the link below (takes 1 minute) and if it looks like you could qualify, you'll be directed to a more in-depth screener. [https://gigs.savvy.coop/pulmozyme/?r=shans](https://gigs.savvy.coop/pulmozyme/?r=shans)
I wanted to let you all know about a company that I have been a member of since 2005 that has healthy cleaning products as well as many other items that all of us use everyday. Melalueca is a wellness company that did a study of their natural cleaning products compared to commercial products that are on the market and I was shocked at the amount of toxins that are in so many of the products we all use and clean with everyday! I thought of our families especially when Melaleuca’s study showed the increased rates of lung damage that the commercial products caused and how dangerous that is for all of our loved ones fighting CF!! I have been using Melalueca’s highly concentrated, all-natural, safe cleaning products since 2005 and have not found anything that compares to them! They clean just as good, if not better than the commercial products without the dangerous chemicals and toxins. They have a 100% satisfaction guarantee on all their products and none of their cleaning products require child-proof caps because they are not toxic! (I know this well as a one of my kids has swallowed a few of their products over the years, and when I called poison control, as soon as they heard it was Melalueca they said there is nothing to worry about! 🙌🏼) If any of you would be interested in learning more about this amazing company, replacing all the toxic chemicals that may be in your house, and maybe earning some extra income when you share the great info with your loved ones and friends please message me and I would be happy to help you and your family in your health and wellness journey!
Is there a way you can post this? I am asking family and friends to help me out with something. A young woman I know who is in thehospital with cystic fibrosis complications among other probles. It is very lonely and stressful. for I am in Grand Rapids and I am far away from home and my mom and dad have passed away. If you have the time please send me get well cards or flowers or goodies. I would love it! Thank you to all who have taken a moment to read this and/or send me a card, god bless you!!! My address is as follows: Janelle Rowell. 100 Michigan St NE. Grand Rapids Mich. 49503. Room 9422. Thank you and god bless
Check out the group I HAVE CYSTIC FIBROSIS. would love for patients to be able to chat, vent, connect etc.
Anyone willing to send me something to do in the hospital? Crafts or coloring books? Anything? So bored here.
Come visit us this weekend, at the greater Toledo Auto Show in the Seagate Convention Center, 401 Jefferson St., Toledo, OH. Take a chance and help raise money for Cystic Fibrosis. Hours are: Friday. 12-9 pm Saturday 10-9 pm Sunday. 10-5 pm
I am looking for some advice. We are hoping to get my son a Vogmask before this weekend. Everyplace we check is out of stock. Any suggestions where we might find one before Saturday? We are in Michigan south of Ann Arbor. Thank you!!
Hi, I represent the artist Dave Santia from Detroit Michigan. Im reaching out to you to see if you would be interested in him donating his time to raise money for any of your upcoming event on November 3rd. Dave has helped numerous charities over the past 7 years raise over $900,000 along with providing entertainment that leaves the guest speechless. To see what Dave has to offer for your event you can visit his website at Davesantia.com
This saturday, 9/15, My friends and I will be live streaming our Call of Duty: Black Ops 4 Blackout Beta to raise money for the Cystic Fibrosis Foundation. My nephew, Liam Collins, has CF. I'm doing everything i can to help support him, and I love to stream, so I thought why not do a fundraising stream? I have a donate button on my stream that will go to the CFF, and i also will have a donate button on our page to make it easier if your not use to twitch. The stream will start at 6pm est and run threw the night. All donations will be going directly to the foundation. We will be doing giveaways during the stream also. We are currently looking for a business that would be willing to possibly match our donations we get in, or even donate a product or gift card to raffle off during the stream. If you guys have any ideas on any companies that would be willing to help, please pm me :) twitch link is twitch.tv/iishadie. We also have an event created for it at https://www.facebook.com/capitalesports/ . I have also created a youtube video promoting it, and would love if we could spread word about the fundraiser. https://www.youtube.com/watch?v=btx5vcx2vfg - - Thanks Again!
John and I enjoyed the “Meet and Greet” Thursday night. We were not sure if we had anything to contribute, but it proved not to be so. I know one thing for sure.... We are never too old to learn something new! Dinner was excellent. Many thanks for you time and effort. Love you all!💞
Thank you so much for the hat! And, more importantly, for everything you do to make the Detroit Great Strides event so wonderful. Team Walk Hard - Breathe Easy is honored to be participating and fundraising. I am, personally, so proud of my team and our chapter of the CFF. You are all amazing!