Society for Women's Health Research

12/31/2022

SWHR is wishing you and yours a healthy holiday season and a ! Thank you for your ongoing support of SWHR and our work to make mainstream.

12/29/2022

SWHR Releases Women’s Health Dashboard - SWHR

Read about each unique section of the new SWHR Women's Health Dashboard and why these conditions were selected to focus on: http://ow.ly/ZWQX50M5wCN

In an effort to highlight and address disparities in women’s health across the lifespan, SWHR launched the Women’s Health Dashboard, as a centralized platform explore the latest data on health conditions and diseases that have significant impacts on women’s health.

12/28/2022

SWHR Responds to NIH Request for Information on Intersection of COVID-19 Pandemic and Health of Women - SWHR

More than 17% of women had long Covid at some point during the pandemic, compared with 11% of men, CNBC writes: http://ow.ly/KXZg50LA9ip

SWHR recommended increasing in in in a letter earlier this year: http://ow.ly/KKWH50LA9zv

The Society for Women’s Health Research provided feedback to the National Institutes of Health (NIH) Office of Research on Women’s Health and NIH Coordinating Committee on Women’s Health on research gaps and opportunities to inform research priority setting at the intersection of the COVID-19 ...

12/27/2022

With an estimated 1.5 million Americans living with (and at least an 5 million people worldwide living with the disease), you may live with, work with, or know someone with lupus. Learn how to best support their wellness with tips from this webinar: http://ow.ly/LV7R50LYs5S

12/27/2022

Access and Coverage for Mental Health Care: Findings from the 2022 KFF Women’s Health Survey

"Among all women ages 18-64 who thought they needed services in the past two years, just half tried and were able to get an appointment for mental health care, 10% tried but were unable to get an appointment, and 40% did not seek care," KFF reports. Read more in the new Women’s Health Survey: http://ow.ly/H59V50M9kT2

Read more about women's mental health in the SWHR Dashboard: swhr.org/womenshealthdashboard

This issue brief focuses on the access and coverage of mental health services using data from the 2022 KFF Women’s Health Survey.

12/22/2022

Save the date for an conversation on January 17! SWHR's panel will discuss the impact of autoimmune diseases on during "The Growing National Burden of Autoimmune Diseases and the Role of Policy in Improving Outcomes." Register now: http://ow.ly/TxXf50M8Q1B

Thank you, Autoimmune Association and La Jolla Institute for Immunology.

12/22/2022

SWHR honored Claire Gill as a 2022 Women's Health Champion this year. Claire works with the Bone Health and Osteoporosis Foundation and National Menopause Foundation, Inc., in addition to her work supporting SWHR.

Thank you, Claire, for your dedication and contributions to advancing ! http://ow.ly/JN5y50M5JFK

12/22/2022

SWHR honored Pamela Price as a 2022 Women's Health Champion this year. Pamela works with The Balm In Gilead Inc. and The National Brain Health Center for African Americans, in addition to her work supporting SWHR.

Thank you, Pamela, for your dedication and contributions to advancing ! http://ow.ly/ShHH50M5Jxl

12/22/2022

It took 10 years for Regina Townsend to be diagnosed with and polycystic ovarian syndrome , before starting in-vitro fertilization treatments.

Regina joined SWHR to speak about her journey this summer: http://ow.ly/J9kA50M23bP

She also recently shared her story with NBC News. Check it out: http://ow.ly/1Y4V50M239H

12/21/2022

Exploring Avenues and Opportunities to Address HPV Vaccine Education to Improve Women’s Health - SWHR

When the SWHR HPV Working Group met this fall, they discussed the power of conversations and resources as two examples of critical ways to improve vaccine uptake. Read their takeaways on the blog: http://ow.ly/xqG450M7vrL

An SWHR interdisciplinary HPV working group of public health researchers and professionals, community leaders, and health care providers discussed how to address barriers and improve HPV vaccine uptake.

12/21/2022

Did you know spending on diseases as a percent of overall National Institutes of Health (NIH)'s budget has remained at only 2.6% between 2013 and 2020?

Learn more in SWHR's new Autoimmune Diseases Policy Agenda: http://ow.ly/kWir50LTY4Z

12/21/2022

Congress Unveils FY2023 Omnibus Spending Bill - SWHR

This week, released the text of the fiscal year 2023 spending legislation, the Consolidated Appropriations Act, 2023 (H.R. 2617). Of note for , the bill provides $76.5 million to the NIH Office of Research on Women's Health for work within the and *xdifferences research space: http://ow.ly/iuEE50M9OI3

Early Tuesday morning, Congress released the text of the fiscal year (FY) 2023 omnibus spending legislation, the Consolidated Appropriations Act, 2023 (H.R. 2617). The package includes all 12 FY2023 spending bills, emergency supplemental funding for recent natural disasters and weather events, and r...

12/21/2022

Through the new Women’s Health Dashboard, SWHR aims to identify notable trends, bring attention to priority issues, and highlight opportunities to address disparities in : swhr.org/womenshealthdashboard

Moving forward, SWHR intends to track and update this data in areas that are influential to women’s health – including public health data, research investment, health insurance coverage, and relevant policy implications and actions.

12/20/2022

Endometriosis Is Common and Debilitating. Why Do We Know So Little about It?

"In spite of how common and debilitating it is, on is severely underfunded—in large part because of stigma around problems and the normalization of female pain," Scientific American writes.

Learn more about endometriosis in the "A Question of S*x" documentary series: http://ow.ly/vvvk50M23Us

Compared with other diseases with similar economic burdens, research on endometriosis is severely underfunded, in large part because we don’t talk about periods.

12/20/2022

SWHR was excited to join partners at a reception earlier this winter honoring Congresswoman Lucille Roybal-Allard and Congresswoman Jaime Herrera Beutler for their commitment to mothers and infants throughout their Congressional tenure. Thank you, Rep Roybal-Allard and Rep Herrera Beutler!

12/20/2022

The Covid Pandemic’s Hidden Casualties: Pregnant Women

"Of all the groups still threatened by Covid-19, it is pregnant women who seem the most unaware of the risks... [Yet] Dozens of studies have shown that the vaccine is safe for pregnant women," The New York Times writes: http://ow.ly/FhYs50M21GZ

Understand the recommendations if you are or with this guide: http://ow.ly/9nAr50M21Fw

Many expectant women have avoided vaccination, unaware that the virus poses great risks to both fetus and mother.

12/19/2022

Supporting New Moms in the Fight Against Postpartum Depression - SWHR

Research from this fall supports the understanding that pregnancy and birthing can have profound, often long-lasting, effects on brain physiology, mood and behavior. Read more: http://ow.ly/C8ef50LYUr8

Learn more about how to support mothers facing in this SWHR blog: http://ow.ly/4GVM50LYUtN

The following blog post captures takeaways from an interview between the Society for Women’s Health Research and Taiwo Ajao, MPH, RN, IBCLC CD (DONA) a maternal-newborn nurse, lactation consultant and doula, and Jenifer LaNore, MSW, LCSW-C, PMH-C, a trained full-spectrum doula (DTI) and owner of G...

12/19/2022

SWHR is honoring two Women's Health Champions this year, Claire Gill, of the Bone Health and Osteoporosis Foundation and National Menopause Foundation, Inc., and Pamela Price, of The Balm In Gilead Inc. and The National Brain Health Center for African Americans, for their work with SWHR this year and within the space over the course of their careers.

Thank you, Claire and Pamela, for your dedication and contributions to advancing women's health! http://ow.ly/xPSk50M5JtQ

12/19/2022

Pregnant People Hit Hard By Flu But Many Remain Unvaccinated

The CDC reports "concerningly, flu vaccination coverage among pregnant people is more than 10% points lower than this time last year." http://ow.ly/1yfY50M5WSg

Find a flu vaccine today at www.vaccines.gov/find-vaccines/.

Flu vaccines help protect pregnant people and their developing babies from flu.

12/16/2022

Did pandemic stress change women’s periods?

"The research is part of a growing body of evidence suggesting that women’s periods changed during the ," Washington Post writes. Read more: http://ow.ly/P3Hy50M22A6

Higher stress levels during the pandemic were linked to more changes in women’s menstrual cycles, new research shows.

12/16/2022

NEW RESOURCE! The new SWHR Women’s Health Dashboard serves as a collection of the latest national and state data on diseases and health conditions that have significant impacts on women’s health across the lifespan: swhr.org/womenshealthdashboard

Check out sections on Disease, , Chronic Obstructive Pulmonary Disease (), Depressive Disorders, and Ischemic (IHD) – all health issues selected because of their impact on across the lifespan.

12/16/2022

Which policy practices could help include more and lactating populations in research? Experts from the American College of Obstetricians and Gynecologists - ACOG, U.S. Food and Drug Administration, Eunice Kennedy Shriver National Institute of Child Health and Human Development, Novartis, and UT Southwestern Medical Center discussed this and much more in a recent briefing. Check out the conversation: http://ow.ly/S26x50LYtfr

12/15/2022

Living Well With Lupus: A Toolkit for Women - SWHR

Recent research shows that African Americans with lupus are more likely to deliver preterm or small-for-gestational age infants compared to healthy African American women, Lupus Foundation of America writes: http://ow.ly/aX2T50LACFi

Learn more about managing through and parenthood is SWHR's new Lupus Toolkit: http://ow.ly/vy3t50LACHg

Lupus is a chronic autoimmune disease where the body attacks its own tissues, creating widespread inflammation and symptoms throughout the body, which often results in organ tissue damage commonly in the joints, skin, brain, heart, lungs, kidneys, and blood vessels. Lupus can take several forms, inc...

12/15/2022

SWHR President and CEO Katie Schubert sat on the Expert Panel on Data Gaps for Women to inform a National Commission. They discussed changes needed to reimagine a data infrastructure that centers , specifically when it comes to the full spectrum of gender identities. Read on: https://bit.ly/3VGAErL

12/14/2022

Endometriosis Toolkit: A Patient Empowerment Guide - SWHR

“Timely diagnosis of endometriosis is more likely if the physician has an expanded list of probing questions for distinguishing the condition from ordinary short-term menstrual discomfort,” authors in MedPage Today write: http://ow.ly/CnZg50LACYa

Learn more about how to prepare for an conversation with your provider in SWHR's Endometriosis Toolkit: http://ow.ly/lv7r50LAE0i

SWHR's Endometriosis Toolkit is designed to empower people of all ages with endometriosis in navigating their care.

12/14/2022

Women’s Health Podcast | Beyond The Paper Gown

Did you know that men and women may have different symptoms when they have a heart attack, which could impact their treatment?

Thank you to the Beyond The Paper Gown podcast for speaking with SWHR CEO & President Kathryn Schubert about *xandgender gaps in medicine and the importance of research. Hear the conversation out now! http://ow.ly/z9Yp50M206L

Podcats on women's health, domestic violence, mental health research and outreach, women's leadership, women's history, and the arts.

12/13/2022

Reps. Castor, Fitzpatrick, and Underwood Introduce Legislation to Promote Greater Inclusion of Pregnant and Lactating Women in Research – Coalition to Advance Maternal Therapeutics

"Today, Representatives Kathy Castor, Brian Fitzpatrick, and Lauren Underwood introduced H.R. 9487, the Advancing Safe Medications for Moms and Babies Act of 2022. The ultimate goal of the is 'to better our understanding of the effect of medications on and women and their infants."

Read more about the importance of this bill in the latest blog at safemeds4moms.org: http://ow.ly/rqJ950M2GJ0

Today, Representatives Kathy Castor (D-FL), Brian Fitzpatrick (R-PA), and Lauren Underwood (D-IL) introduced H.R. 9487, the Advancing Safe Medications for Moms and Babies Act of 2022. The ultimate goal of the bipartisan legislation is “to better our understanding of the effect of medications on pr...

12/13/2022

New Autoimmune Agenda Highlights Policy Measures to Improve Outcome for Women Living with Autoimmune Diseases - SWHR

In response to a roundtable conversation this fall and in light of the growing prevalence of diseases and conditions in the United States and their impact on , SWHR launched a new agenda. Learn more about the document and its call to action: http://ow.ly/6pAp50LTXYn

Autoimmune diseases and conditions, a group of more than 80 chronic diseases that develop when the immune system mistakenly attacks the body’s own healthy organs, tissues, and cells, affect more than 23.5 million people in the United States, with some estimates ranging up to 50 million people. How...

12/13/2022

Rep. Castor Introduces Bipartisan Legislation to Promote the Inclusion of Pregnant and Lactating Women in Clinical Research

SWHR thanks Representatives Kathy Castor, Brian Fitzpatrick, and Lauren Underwood for introducing the Advancing Safe Medications for Moms and Babies Act of 2022 to improve our understanding of medications' effect on and women and their children. This bill is a critical step forward! http://ow.ly/1gRz50M2wBF

 Today, Representatives Kathy Castor (FL-14), Brian Fitzpatrick (PA-01), and Lauren Underwood (IL-14) introduced H.R. 9487, the Advancing Safe Medications for Moms and Babies Act of 2022. This bipartisan bill will build upon prior legislation to better our understanding of the effect of medications...

12/09/2022

Research!America Alliance Discussion with Carolee Lee, CEO & Founder, WHAM

WHAMnow and Research!America held a conversation recently about why new investment in is a necessity and how it can benefit and the . Check it out! http://ow.ly/FG2y50LZqeg

Carolee Lee, Chief Executive Officer & Founder of Women’s Health Access Matters (WHAM), joined us to discuss why new investment in women's health research is...

12/08/2022

What causes ? How can you best manage lupus symptoms and flares? How can you prepare to discuss lupus with your provider? This SWHR webinar helps answer these questions and more: http://ow.ly/xKbK50LYsbo

12/06/2022

can take several forms, but the disease overall disproportionately affects women — 90% of Americans with Lupus are women ages 15-44.

SWHR's Lupus Toolkit was created to support and their families in their , , and daily care journeys with the disease. Check it out today: http://ow.ly/2B2r50LwKQo

12/05/2022

Happening tomorrow! Work is still needed to fully include and lactating populations in . Join the Coalition to Advance Maternal Therapeutics (CAMT) on December 6 for this important conversation: http://ow.ly/3rbG50Lzj8B

Thank you to the American College of Obstetricians and Gynecologists - ACOG, Eunice Kennedy Shriver National Institute of Child Health and Human Development, U.S. Food and Drug Administration, and the other panelists.

Follow the full conversation on the Twitter timeline.

12/05/2022

As part of SWHR's commitment to raising awareness about the disproportionate impact of autoimmune diseases on and driving related policy change, SWHR published an policy agenda: http://ow.ly/CUJh50LTXoZ

The agenda is intended to serve as a roadmap of key policy needs across , clinical care, awareness and , and and access.

12/04/2022

Happening tomorrow! Don’t miss the last of SWHR’s Closing the Loop for webinars. Panelists will explore content in the new Lupus Toolkit, like tips for everyday care and lifelong treatment: http://ow.ly/GjgL50LJzoc

12/02/2022

SWHR Sends Letter Highlighting Legislative Priorities in Remainder of 117th Congress - SWHR

SWHR sent a letter to congressional leadership earlier today urging to swiftly pass FY23 spending legislation and calling attention to legislation that could improve outcomes for across the lifespan. Read the letter here: http://ow.ly/EQy350LTX9z

The Society for Women's Health Research (SWHR) sent a letter to House and Senate leadership urging both chambers to come together swiftly to pass fiscal year 2023 appropriations legislation and calling attention to congressional initiatives that, if enacted, could improve women's health across the l...

12/02/2022

The Public Health and Women’s Health Impact of Gun Violence - SWHR

"With its impacts felt across families, communities, and the country, gun violence in the United States is not only a public health crisis, it is a issue," SWHR writes. Read more about this pressing issue, up on the blog now: http://ow.ly/Yi1T50LQs0m

Every day, more than 100 people die from gun violence across the country. With its impacts felt across families, communities, and the country, gun violence in the United States is not only a public health crisis, it is a women’s health issue.

12/01/2022

disproportionately affects women? Join SWHR, Looms4Lupus, Columbia University, and Northwestern University Feinberg School of Medicine on December 5, 2022, for this Closing the Loop for webinar featuring diagnosis, treatment, and wellness tips, especially for women .

Register today: http://ow.ly/vbeP50LJzWv

12/01/2022

Living well with at all stages of life is possible, particularly with the right care team behind you, Dr. Porter said in a recent webinar. Watch the full event now: http://ow.ly/7Nm750LJzke

11/30/2022

providers play a critical role in improving among American Indian and Alaska Native people. It’s important to make sure patients are comfortable sharing their concerns with providers. Learn more at cdc.gov/HearHer/AIAN. CDC Hear Her