Caregiver Action Network

10/23/2026

We’re proud to announce that Caregiver Action Network has been selected as a 2026 Everyday Health Trusted Health Resource!

The article, written by Christina Vogt and medically reviewed by Angela D. Harper, MD, recognizes our educational resources, our peer support community, and our free National Caregiver Help Desk.

Family caregivers carry a lot, often while working, raising kids, and managing their own health. For nearly 30 years, CAN has worked to make sure they have trusted information and real people to turn to. Recognition like this helps more families find that support when they need it.

Thank you to Everyday Health for recognizing our commitment to providing trusted education, peer support, and resources for family caregivers - and to Yahoo Health for spotlighting this recognition. We’re honored to appear alongside Alzheimer's Association, UsAgainstAlzheimer’s, Family Caregiver Alliance, Daughterhood, Lorenzo's House, and the VA Caregiver Support Program, all of whom do meaningful work for families affected by dementia.

Read the full article: www.caregiveraction.org/top-alzheimers-and-dementia-caregiver-resources-yahoo-health/

10/23/2026

Caregiver Action Network is inviting family caregivers who are supporting a loved one with colorectal cancer to participate in a 90-minute virtual Roundtable discussion.

📅 Tuesday, October 27 - 1-2:30 p.m. ET
✅ Register to participate: https://www.caregiveraction.org/caregiver-story/

The discussion will explore the challenges caregivers face, the resources they rely on, and where additional support may be needed. We are especially interested in experiences related to metastatic colorectal cancer, early-onset diagnoses, and barriers to care that may affect different communities.

Participants will have the opportunity to share what has been most difficult, what has helped, and what information, tools, or support would make caregiving easier. What we learn will help us better understand unmet needs and inform future caregiver resources.

If this is you, please join us for this valuable discussion. Or, share this with someone you know caring for someone with colorectal cancer.

10/23/2026

"If you have no other diagnosis that matches those symptoms, advocate for further workup. You have to be your own advocate. Ask about other things it could be. Get a second opinion. If you're concerned specifically about amyloidosis, see if you're near an amyloidosis center that is dedicated to treating and diagnosing this disease."
— Jennifer Greenman, Clinical Care and Education Manager, Amyloidosis Research Consortium

Heart problems, carpal tunnel syndrome, spinal stenosis, and neuropathy may seem like completely separate health concerns.

With ATTR amyloidosis, understanding how symptoms may connect can be an important part of the diagnostic journey.

In this caregiver-focused conversation, our guest speakers explore why ATTR can be difficult to recognize and how caregivers can become stronger partners in seeing and communicating the bigger picture.

The replay is now available: Helping Connect the Dots: A Caregiver’s Guide to ATTR Amyloidosis. Watch to learn more about:
🔎 Why symptoms may initially appear unrelated
📝 How caregivers can document changes over time
💬 What patterns may be important to share with health care providers
👩‍⚕️ Why knowledgeable specialists can matter
🗣️ How to advocate for additional evaluation when something doesn’t seem right
❤️ How to navigate the uncertainty of a prolonged diagnostic journey

Watch the replay: www.caregiveraction.org/amyloidosis-attr

Know a caregiver who may benefit? Please share this conversation with them.

10/23/2026

What’s the best advice your loved one ever gave you?

10/22/2026

For 76% of caregivers we surveyed, one of the biggest concerns after surgery starts when their loved one comes home.

Through Ready, Set, Recover, an initiative from Caregiver Action Network’s FAM Network with support from Pacira BioSciences, Inc., caregivers shared what those first days can really involve: watching for side effects, adapting to changing needs, preparing the home, and juggling everything else in life.

See what caregivers learned and what could help you prepare for the transition home: https://www.families-network.org/advocacy/ready-set-recover/

10/22/2026

Caregivers are often the ones managing pain at home after surgery, but too many enter recovery without the information and support they need.

In a new blog post, CAN’s Amera Bilal shares insights from our Ready, Set, Recover initiative and explains why understanding pain management options, including non-opioid approaches, before surgery can help caregivers feel better prepared for what comes next.

Read Amera’s perspective:

During National Substance Use Prevention Month, I am reminded that prevention can begin long before a crisis, and often before a loved one comes home after surgery.  Through my work at Caregiver Action Network (CAN), I hear from caregivers who manage a loved one’s recovery with little preparation...

10/22/2026

TODAY, OCT. 22, AT 1 P.M. ET

Heart failure. Carpal tunnel syndrome. Spinal stenosis. Neuropathy. If your loved one has been treated for different symptoms by different specialists, it may be difficult to know whether those issues are connected.

That is one reason ATTR amyloidosis can be challenging to recognize.

Today, Jennifer Greenman of Amyloidosis Research Consortium; Mike Lane, founder of Amyloidosis Army; and Deborah Stamps, skilled nurse executive, will discuss how caregivers can help see the bigger picture.

Helping Connect the Dots: A Caregiver’s Guide to ATTR Amyloidosis

The conversation will cover:
🔎 Why symptoms may appear unrelated
🩺 Why misdiagnoses and delays can happen
📝 What caregivers can track over time
💬 What patterns may be important to discuss with providers
👩‍⚕️ Why finding knowledgeable specialists can matter
🗣️ How to advocate without feeling like you are challenging the doctor

Register: https://www.caregiveraction.org/amyloidosis-attr/

10/21/2026

Caregiving is not just managing care. It’s managing systems.

Insurance portals, referrals, medication changes, paperwork, phone calls that go nowhere.

If you’re trying to navigate all of it while also being the emotional anchor, the National Family Caregiver’s Help Desk, powered by Carallel, can help you sort through what matters, what to do next, and how to move forward.

Start here if you’re:
📄 Buried in forms
📞 Tired of being on hold
🗓️ Trying to plan the next step with clear answers

Get support today: https://www.caregiveraction.org/helpdesk/

10/21/2026

“The research team truly wants participants to succeed.”

Jim’s words reflect something many families experience during a clinical trial: relationships and communication become an important part of the process.

As a caregiver, you may be the person who sees what happens between trial visits. You may notice changes in your loved one’s symptoms, behavior or daily experiences.

Ask the research team what should be reported, who to contact with questions, what to do after hours, and how information will be shared with your loved one’s regular doctors.

Watch Jim’s story and swipe for ways caregivers can help keep communication moving.
Learn more at: caregiveraction.org/clinical-trial

10/21/2026

TOMORROW, OCT. 22, AT 1 P.M. ET

What if your loved one’s heart problems, carpal tunnel syndrome, spinal stenosis, or neuropathy aren’t completely separate?

ATTR amyloidosis can be difficult to recognize because symptoms may affect different parts of the body, resemble more common conditions, and be treated by different specialists.

For families, that can mean years of appointments and diagnoses without anyone realizing the symptoms could be connected.

Tomorrow, Caregiver Action Network will present:
Helping Connect the Dots: A Caregiver’s Guide to ATTR Amyloidosis

With expert guests: Jennifer Greenman of Amyloidosis Research Consortium; Mike Lane, founder of Amyloidosis Army; and Deborah Stamps, skilled nurse executive and CEO of Deborah Stamps Consulting, LLC.

Together, they’ll discuss:
🔎 Why ATTR symptoms can be difficult to connect
📝 What caregivers can document over time
💬 What patterns and warning signs may be worth discussing with a provider
👩‍⚕️ Why knowledgeable specialists can matter
🗣️ How to advocate for further evaluation
❤️ How to navigate the fear and frustration of not having answers

Register: https://www.caregiveraction.org/amyloidosis-attr/