Tourette Association of America Public Policy

Tourette Association of America Public Policy The Public Policy Page is designed for Community Building and Public Policy use to help YOU do self-advocacy. We welcome you and invite you to join us.

Welcome to the Tourette Syndrome Association’s Public Policy Facebook. Please be advised that we will not provide medical advice or referrals here. Public opinions posted on this page are those of individuals and are not the opinion of the Public Policy Office or the national organization. We welcome and invite you to join us. Follow Us on Facebook, Twitter and visit The Public Policy Action Center at: http://cqrcengage.com/tsa/home. *With general or specific questions about Tourette and Tic Disorders, Membership, Referrals, Medical and Education Issues: Contact the National Tourette Syndrome Association in Bayside, New York at 718-224-2999. *With questions about Public Policy, Congressional Outreach, and Grassroots Advocacy: Contact the Public Policy Office in Washington D.C. at: 202-408-7009. Meet the Public Policy Team: Elridge D. Proctor - Vice President of Public Policy Telephone: 202-408-7009 Email: [email protected] Timothy J. Convy - Public Policy Associate Telephone: 202-408-6341 Email: [email protected]

Act Now for Tourette. Contact your U.S. Senators and ask them to support S. 849 the Advancing Research for Neurological ...
09/21/2015

Act Now for Tourette. Contact your U.S. Senators and ask them to support S. 849 the Advancing Research for Neurological Diseases Act of 2015.

Now is the time for Congress to Work Together to Support the National Institutes of Health (NIH). Invest in Medical Rese...
09/18/2015

Now is the time for Congress to Work Together to Support the National Institutes of Health (NIH). Invest in Medical Research!

Tourette Association of America Public Policy's cover photo
08/12/2015

Tourette Association of America Public Policy's cover photo

Act Now for Tourette Syndrome! Contact your U.S. Senators and invite them to an important briefing on the Advancing Rese...
08/07/2015
Take Action Now to advocate for Tourette and the Advancing Research for Neurological Diseases...

Act Now for Tourette Syndrome! Contact your U.S. Senators and invite them to an important briefing on the Advancing Research for Neurological Diseases Act S.849 on September 16th. Click Here to send an invite and ask for their support of #neurodata S.849 today.

http://cqrcengage.com/tourette/app/write-a-letter?17&engagementId=122613

Take Action Now to advocate for Tourette and the Advancing Research for Neurological Diseases Act of 2015 Invite Congressional Staff to support Tourette and the Advancing Research For Neurological Diseases Act Briefing on September 16th! Prefix First Name Last Name Address Line 1 City Stat…

You Can Play a Role in National Tourette Awareness!As we celebrate National Tourette Awareness Month we are pleased to s...
05/18/2015
Tourette Association of America

You Can Play a Role in National Tourette Awareness!

As we celebrate National Tourette Awareness Month we are pleased to share exciting news about the organization and current prevalence for Tourette and Tic Disorders.

For over forty years the Tourette Syndrome Association (TSA) now called the Tourette Association of America has led support for all people living with Tourette and Tic Disorders. Let’s build on this momentum.

http://cqrcengage.com/tsa/TouretteAssociationOfAmerica

Tourette Association of America Public Policy's cover photo
05/15/2015

Tourette Association of America Public Policy's cover photo

Tourette Association of America Public Policy
05/15/2015

Tourette Association of America Public Policy

Learn more about TSA's National Advocacy Day on Capitol Hill on March 25th by visiting the TSA Public Policy Toolkit! Cl...
02/20/2015
National Advocacy Day

Learn more about TSA's National Advocacy Day on Capitol Hill on March 25th by visiting the TSA Public Policy Toolkit! Click here to learn more: http://cqrcengage.com/tsa/NatAdvocacyDay

Thank you for your interest in learning more about advocating for Tourette Syndrome through the National Tourette Syndrome Association’s Public Policy Action Center. With the internet, advocating is now easier than ever-almost instantly constituents are given the ability to contact their elected off…

CARE Act for Tourette Syndrome (H.R. 619/S. 276) Reintroduced by NJ Congressman Albio Sires and Senator Bob Menendez.Nat...
02/20/2015
CARE Act for Tourette Syndrome Reintroduced

CARE Act for Tourette Syndrome (H.R. 619/S. 276) Reintroduced by NJ Congressman Albio Sires and Senator Bob Menendez.

National Tourette Syndrome Association Leads Efforts to Support the Passage of this Critical Bill.

Click here to learn more: http://tsa-usa.org/news/CARE-ActCongress.html

January, 29, 2015 – Bayside, NY – The national Tourette Syndrome Association (TSA) collaborated to reintroduce a critical bill, the Collaborative Academic Research Efforts (CARE) for Tourette Syndrome Act, to bolster efforts toward research for Tourette Syndrome (TS).

With National Advocacy Day coming on March 25th individuals and groups are organizing their own efforts to communicate t...
01/27/2015

With National Advocacy Day coming on March 25th individuals and groups are organizing their own efforts to communicate to Congress that Americans living with TS reside in every US Representative’s Congressional District and in every Senator’s home state. Visit us at: http://cqrcengage.com/tsa/NatAdvocacyDay to learn more.

01/08/2015

The Tourette Syndrome Association's National Advocacy Day is Wednesday March 25, 2015.

1. Congressional Tourette Syndrome Caucus.
2. Public Health/Ed/Research Program at the CDC.
3. Collaborative Academic Research Efforts (CARE) for TS Act.

If you are interesting in participating in National Advocacy Day either in person in Washington DC or in your home state please contact Timothy Convy at [email protected].

The Tourette Syndrome Association Public Policy Office will be holding a Webinar for Youth Ambassadors and Chapter Leade...
01/08/2015
Home

The Tourette Syndrome Association Public Policy Office will be holding a Webinar for Youth Ambassadors and Chapter Leadership on January 15, 2015 at 8:00 pm EST. We encourage anyone interested in participating in National Advocacy Day to join us.

During this webinar we will teach you how to set up a meeting with your Member of Congress as well as how to communicate effectively with your elected officials through email and telephone using the TSA Public Policy Action Center located at cqrcengage.com/tsa.

To register for the free webinar please go to: https://cc.readytalk.com/r/93vffyzpha3h&eom

Anyone interested in becoming involved in TS advocacy please notify your State Chapter/Support Group Leader and to listen to this free webinar and take action in advocacy email us at:[email protected].

We are empowering you with direct access to Capitol Hill through this online legislative service site that is designed to help you do self -advocacy. We encourage you to get Engaged and Take Action!

01/08/2015

The Tourette Syndrome Association Public Policy Office is pleased to announce the establishment of the Pilot Volunteer State Policy Director program.

The Volunteer State Policy Directors will serve as the primary liaison between TSA's Public Policy Office, the Chapter/Support Group for grassroots advocacy activities. The Directors will help TSA to organize and coordinate advocacy efforts locally and nationally.

THE 5 VOLUNTEER STATE POLICY DIRECTORS ARE:
Florida: Rebekah Moorehead
New York (Long Island): Jane & Jennifer Zwilling
New York (Upstate): Katelyn Jones
Virginia: Elizabeth Baxter, Kelley Handshaw, and Jackie McCool
Oregon/Washington: Todd Henry and Carla Richards

If you are interested in getting involved in TS Advocacy and you don't live in one of the 5 states listed above please reach out to TSA: call 202-408-6341 or Email: [email protected].

10/15/2014

US. Representative Ray Lujan of New Mexico's 3rd District highlights the importance of Tourette Syndrome Awareness.

TSA National Advocacy Day 2014
10/15/2014

TSA National Advocacy Day 2014

10/15/2014

Our Policy activities will encourage you as voters and constituents to call, write, or go meet with your elected officials about issues impacting you, your family and the community. Remember, advocacy is a powerful tool, but it takes individual members like you, who have the courage to tell your story, to change the hearts and minds of those who hear it.

10/15/2014

Great video about how to have a successful meeting on Capitol Hill courtesy of our friends at NAEMT and Holland & Knight.

10/15/2014

Overview of the Legislative Process video created by the Library of Congress.

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