17/04/2026
Today 17 April 2026 , The National Blood Services Zimbabwe in conjunction with Zimbabwe Haemophilia Association hosted the World Haemophilia Day . Various partners attended the event, health care practitioners, caregivers and patients
We were honored to be part of program and we highlighted the urgent need for timely diagnosis of haemophilia and other rare disorders.
The commemoration emphasizes that the colour red symbolizes both blood and the invisible struggles faced by patients whose conditions often go unrecognized. Families in Zimbabwe endure years of uncertainty, misdiagnosis, and financial strain while searching for answers in a healthcare system not designed to detect rare conditions. Globally, only one in four people with haemophilia are diagnosed, with rates even lower in low‑income countries. Diagnosis is framed not as a technical step but as a human right — the gateway to appropriate care, treatment, and dignity. It transforms medical decisions, family resources, and a child’s ability to thrive. Rare Disorders Zimbabwe calls for investment in diagnostic capacity, training for community health workers, and genomic tools tailored to African populations. The organization envisions a future where Zimbabwe builds its own evidence base, contributing to global understanding while centering African patients. The speech concludes with a powerful reminder: diagnosis should not be a privilege but a promise, and every person living with haemophilia deserves recognition, care, and a healthcare system that actively seeks them out.
