Lowe Syndrome Association, Inc.

Lowe Syndrome Association, Inc. Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Lowe Syndrome Association, Inc., Chicago Ridge, IL.

Our mission is to improve the lives of persons with Lowe syndrome and their families through fostering communication, providing education and supporting research so that individuals can attain their highest potential.

School's out and it's time to celebrate! 🎉🎓The Lowe Syndrome Association would love to recognize the incredible boys in ...
05/30/2026

School's out and it's time to celebrate! 🎉🎓

The Lowe Syndrome Association would love to recognize the incredible boys in our community who are graduating or completing another school year milestone.

Whether your son is finishing preschool, elementary school, middle school, high school, a transition program, or another educational achievement, we want to celebrate with you! 💙

Submit a photo through Community Moments and share a few details: https://forms.gle/GgEsBsBURRrBD5iU9

📚 Grade completed or graduation milestone
🎓 School or program (optional)
⭐ Favorite accomplishment, memory, or achievement from the year
📸 A photo you'd like us to feature

We look forward to highlighting these special moments and celebrating the hard work, growth, and accomplishments of our amazing community members.

Submit your Community Moment today and help us celebrate the Class of 2026 and all of this year's student successes! 🎉💙

Let’s reflect together🫶What has been a highlight of your journey so far this year?Big or small, your moments matter and ...
05/28/2026

Let’s reflect together🫶

What has been a highlight of your journey so far this year?

Big or small, your moments matter and can inspire others in this community

Support does not always have to be big to matter! It can look like checking inListening without trying to fix everything...
05/27/2026

Support does not always have to be big to matter!

It can look like checking in
Listening without trying to fix everything
Learning about Lowe Syndrome
Or simply being present

Those small moments mean more than you know.

Today, we remember and honor the brave men and women who made the ultimate sacrifice for our freedom. 🇺🇸As we gather wit...
05/25/2026

Today, we remember and honor the brave men and women who made the ultimate sacrifice for our freedom. 🇺🇸

As we gather with loved ones this Memorial Day, we hold close the values of strength, sacrifice, and community that continue to inspire us every day within the Lowe Syndrome community. 💙

Wishing our families a day filled with remembrance, gratitude, and meaningful moments together.

Hope in every step forward 💙Progress in research may feel slow at times, but every step brings us closer to better under...
05/21/2026

Hope in every step forward 💙

Progress in research may feel slow at times, but every step brings us closer to better understanding, improved care, and new possibilities

Hope is built in these moments

One day, hope becomes reality 💙Every family in the Lowe Syndrome community carries hopes for brighter days, better care,...
05/19/2026

One day, hope becomes reality 💙

Every family in the Lowe Syndrome community carries hopes for brighter days, better care, greater understanding, and ultimately a cure.

Thank you to Sara Escobedo for sharing her heart and Mikalo’s story with our community. Stories like these remind us why advocacy, research, and support matter so deeply.

Want to share your own “One Day” hope or story with us? We’d love to hear from you 🤍
https://docs.google.com/forms/d/e/1FAIpQLSd5UPzaLjlm9zohIZGKN_7iVK9BJS0bEJicQt2k0L9LvQNBpg/viewform?usp=header

📣Get involvedThere are so many ways to support the Lowe Syndrome communityGet connectedShare our missionSpread awareness...
05/14/2026

📣Get involved

There are so many ways to support the Lowe Syndrome community

Get connected
Share our mission
Spread awareness
Donate

Every action, big or small, helps make a difference!

Learn more and get involved:
https://lowesyndrome.org/

Want to directly support families and advocacy efforts? You can also donate here: https://lowesyndrome.org/donate/

May is Mental Health Awareness Month 🌿For caregivers and families, mental health matters just as much as physical health...
05/12/2026

May is Mental Health Awareness Month 🌿

For caregivers and families, mental health matters just as much as physical health

Taking care of yourself is not selfish
It is necessary

You deserve support
You deserve rest
You deserve moments to breathe

Happy Mother’s Day🌷Today we celebrate the incredible moms in the Lowe Syndrome community! The women who love endlessly, ...
05/10/2026

Happy Mother’s Day🌷

Today we celebrate the incredible moms in the Lowe Syndrome community! The women who love endlessly, advocate fiercely, and show up every single day with strength and grace. Your impact reaches far beyond what words can describe, and the care you give changes lives in the most meaningful ways.

This Mother’s Day, we would love to hear from our boys and men in the community! What are 3 things you love most about your mom? Parents and caregivers are welcome to help type responses or share on their behalf🫶🏼

We are endlessly grateful for each and every one of you.

We want to hear from you!What is one thing you wish people understood about Lowe Syndrome? Please post your response bel...
04/30/2026

We want to hear from you!

What is one thing you wish people understood about Lowe Syndrome? Please post your response below.

Your voice helps raise awareness, demystifies misconceptions, and create a more understanding environment for our community

Share in the comments below💙

Address

Chicago Ridge, IL

Telephone

+12166307723

Website

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