Epilepsy Foundation Hawaii

Epilepsy Foundation Hawaii The Epilepsy Foundation of Hawaii leads the fight to overcome the challenges created by epilepsy, find cures and save lives.
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Operating as usual

14,000 people in Hawaii are living with epilepsy. We are looking for people in Hawaii to become Seizure First Aid Certif...
08/12/2020

14,000 people in Hawaii are living with epilepsy. We are looking for people in Hawaii to become Seizure First Aid Certified! Sign up for our next training tomorrow, August 13, 2020, at 10:00 a.m. HST: epilepsy.com/FirstAid

A huge congratulations to the team at Hawaii Pacific Neuroscience for having the BEST signs, videos, cheers, rally call,...
08/04/2020

A huge congratulations to the team at Hawaii Pacific Neuroscience for having the BEST signs, videos, cheers, rally call, parade, and more in support of this year's virtual Freedom Run!!! Thank you so much @hipacneuro for your sponsorship this year, for always showing up for this event, and for your year-round partnership in creating better outcomes for people living with epilepsy and other neurological conditions.

A package with a Target gift card and goodies will be delivered to 1 of their 3 Oahu locations.

#HawaiiPacificNeuroscience #HPN #NeurologicalCare #EpilepsyResearch #SeizureFreedom #FreedomFromSeizures #FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #IAlohaSomeoneLivingWithEpilepsy

​A huge congratulations to Maureen of Team Mighty Mo, our highly-spirited Freedom Run emcee who was truly the most festi...
08/04/2020

​A huge congratulations to Maureen of Team Mighty Mo, our highly-spirited Freedom Run emcee who was truly the most festive individual this year! She was donned in purple from head to toe, with an Epilepsy Foundation of Hawaii purple dri-wicking visor, #EndEpilepsy T-shirt - #EpilepsyCanAffectAnyoneWithABrain #AnyoneWithABrainCanAffectEpilepsy , and a homemade purple tutu. She used her purple phone using Instagram purple hearts and filters to send her picture in. Her backdrop throughout the live virtual event consisted of epilepsy awareness signage and past Freedom Run T-shirts and gear. Maureen has won a gift package with EFH goodies and a purple Neckie Mask from The Barrier Method: The (stylish, smarter, better, more comfortable, calming) new way to protect your health while in-flight or wherever you need it.

Thank you, Maureen, for your fierce drive for a cure, dedication, and advocacy for not only people living with epilepsy but also for individuals and families living with cystic fibrosis. #UntilItsDone #doinitfordrew #SeizureFreedom #FreedomFromSeizures #FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #IAlohaSomeoneLivingWithEpilepsy

Congratulations to Team Averie for having the largest team for the 2020 Virtual Freedom Run/Walk from Epilepsy! They ral...
08/04/2020

Congratulations to Team Averie for having the largest team for the 2020 Virtual Freedom Run/Walk from Epilepsy! They rallied up 41+ family members and friends to support Ms. Averie and her fight for Seizure Freedom. On July 4th, she and her team celebrated her 4th month of no seizures since she was 4 years old! Team Averie won a gift basket with an Amazon Fire, some goodies and swag. Congratulations, Team Avarie!

#SeizureFreedom #FreedomFromSeizures #FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #ialohasomeonelivingwithepilepsy💜 #teamaverie

Congratulations, Team Jax, for the decade of volunteering, working, walking, and fundraising through the Freedom Run and...
08/04/2020

Congratulations, Team Jax, for the decade of volunteering, working, walking, and fundraising through the Freedom Run and many of EFH programs and events! Through this virtual and COVID year of uncertainty, Team Jax still showed up in full force and was the highest fundraising team! Team Jax rallies around and for their epilepsy warrior, Jax, who has lots to celebrate since his journey with epilepsy began 10 years ago. Team Jax has always been committed to seizure education and advocacy for others living with epilepsy. Congratulations, Team Jax! They will receive a gift package with a Target gift card, End Epilepsy gear, and swag for the team.

#SeizureFreedom #FreedomFromSeizures #FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #IAlohaSomeoneLivingWithEpilepsy #TeamJax

If you’re an adult living with epilepsy or a caregiver in search of guidance from those who have been there, we're here ...
07/28/2020

If you’re an adult living with epilepsy or a caregiver in search of guidance from those who have been there, we're here to support you. If you're looking for advice and encouragement from others, or just someone looking for camaraderie from others who understand the challenges of living with epilepsy, we urge you to join our adult online support group on July 29, 2020 at 7:00 pm.
Email [email protected] or call the office at 808-528-3058 to answer a few questions and get the Zoom link to connect. •
#epilepsyhawaii #epilepsy808

Stigma surrounding epilepsy continues to fuel discrimination and isolation. Despite great progress in recent years, thos...
07/27/2020

Stigma surrounding epilepsy continues to fuel discrimination and isolation. Despite great progress in recent years, those living with epilepsy can face challenges when it comes to education, employment, and community life. If you need help, we’re here for you. Please call our 24/7 helpline at 1-800-332-1000. #ADA30

Repost from @epilepsyfdn

Repost from @hihovolunteer•Stay safe Hawaiʻi and take care of yourselves and each other.
07/26/2020

Repost from @hihovolunteer

Stay safe Hawaiʻi and take care of yourselves and each other.

07/25/2020

Fighting for #EpilepsyFreedom and awareness is what Hailee does so she and others who experience seizures can feel safe.

Share your story here in the comments, DM, or email [email protected]
Support #EpilepsyResources in Hawaii by giving to EFH’s virtual #FreedomRun through the end of July.

#FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #IAlohaSomeoneLivingWithEpilepsy #LiveHappy #EpilepsyEducation #EpilepsyWarrior

Friday is #InternationalSelfCareDay! Whether you live with epilepsy or help someone who does, caring for your emotional ...
07/25/2020

Friday is #InternationalSelfCareDay! Whether you live with epilepsy or help someone who does, caring for your emotional health is important. There are many ways to improve emotional health. Techniques such as meditation, journaling, art therapy, and cognitive behavior therapy may help people understand and manage their needs and feelings better. Check out the Wellness Institute’s Emotional Health & Epilepsy video for more information: bit.ly/EmotionalHealthWWB
Comment below & tell us what your favorite self-care activity is!
#WellnessInstituteTips #Wellness #ISCD

Repost from @epilepsyfdn

07/24/2020

Lisa Winschel and her family sadly lost their brother, son, uncle, and friend, Paul, to SUDEP 9 months ago. They are strong advocates for epilepsy education, research, and support for people & families living with epilepsy. #FreedomFromSeizures is what they fight for.

Losing someone you love unexpectedly is especially difficult. The Epilepsy Foundation's SUDEP Institute in partnership with Cameron Boyce Foundation continues to create awareness and education around SUDEP, research to eradicate it, and support the bereaved. To learn more about Sudden Unexpected Death in Epilepsy (SUDEP) go to www.knowsudepnow.org.

#KnowSUDEPnow #FighttheFight #Advocate #EpilepsyResearch #EpilepsyHawaii #Epilepsy808 #IAlohaSomeoneLivingWithEpilepsy💜

07/23/2020

The World Federation of Neurology recognizes July 22 as World Brain Day to raise awareness about the brain and the health concerns surrounding it. We want you to raise awareness by teaching others that the epilepsies are a spectrum of disorders of the brain and that anyone can have a seizure.

Repost from @epilepsyfdn

Team Avarie is the largest team for this year’s  Freedom Run 2020! Check out the #TeamAvarie CrossFit Workout! 🏋️‍♀️ 🏃🏽‍...
07/21/2020

Team Avarie is the largest team for this year’s Freedom Run 2020!

Check out the #TeamAvarie CrossFit Workout! 🏋️‍♀️ 🏃🏽‍♀️. (👀 #s 4, 6, 10)

4 years old when she had her first seizure
4 months seizure free
6 years old now
10 seizures since her first

#FreedomFromEpilepsy #ForAvarie is what her family wants.
#ialohasomeonelivingwithepilepsy #epilepsyhawaii #epilepsy808

There still time to add to your team or fundraising pages or submit photos and videos. Link in bio. 💜

07/17/2020

Join local Hawaii artist and epilepsy warrior, Laura Mellow, in lighting the candle of understanding with the goal of #FreedomFromSeizures and #ControlOfSeizures so we can live a healthy life with the ones we love. @lauramellowart

Share your story here in the comments, DM, or email [email protected]

http://www.epilepsyhawaii.org/about-epilepsy/resources/

Support #EpilepsyResources in Hawaii by giving to EFH’s virtual #FreedomRun through the end of July.

#FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #IAlohaSomeoneLivingWithEpilepsy #LightTheCandleOfUnderstanding #EpilepsyEducation #epilepsywarrior

During a traditional EEG in a doctor’s office, the technician tries to cause a seizure to happen. After placing electrod...
07/16/2020

During a traditional EEG in a doctor’s office, the technician tries to cause a seizure to happen. After placing electrodes on your head, the technician may have you do things like open and close your eyes, look at flashing lights, breathe rapidly or deeply, and take a nap. What type of EEGs have you had and what were they like? What questions do you have about EEGs? Share with us!
What happens during an EEG: https://www.epilepsy.com/learn/diagnosis/eeg/procedure

#EEG #EpilepsyHawaii #epilepsy808

Epilepsy Foundation Hawaii's cover photo
07/14/2020

Epilepsy Foundation Hawaii's cover photo

07/14/2020

"I'm an advocate for seizure freedom. I'm passionate about educating and informing the community about what it means to have epilepsy and what it means to love someone with epilepsy. Breaking the stigma and knowing what to do if you were to witness or have a seizure yourself is important and can save someone's life or the life of someone you love."

Why is #SeizureFreedom important to you? What can #SeizureEducation and #EpilepsyAwareness mean for your community or loved one(s)?

The annual Freedom Run supports no cost epilepsy education, resources, and support services for our community. It also serves as an opportunity to highlight what freedom from seizures would mean to members of our epilepsy community. #Donate #ShareYourStory #TalkAboutEpilepsy #Advocate #BeInvolved

Donate at http://www.epilepsyhawaii.org/support-us/

#FreedomFromSeizures #FreedomRunHawaii
#EpilepsyHawaii #Epilepsy808
#IAlohaSomeoneLivingWithEpilepsy

Mahalo Eisai for sponsoring the Freedom Run again this year! We appreciate the steady support for our mission in all tha...
07/14/2020

Mahalo Eisai for sponsoring the Freedom Run again this year! We appreciate the steady support for our mission in all that we do.

#FreedomFromSeizures #FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #eisai

07/13/2020

Nalei wants #SeizureFreedom for her Uncle Kingston who has been “fighting the seizure his whole life” and wants it to stop. She loves him very much and is grateful for her Tutu and Apo for taking care of him. #IAlohaSomeoneLivingWithEpilepsy

The Freedom Run supports epilepsy education and resources here in Hawaii. Donations are accepted anytime. This year’s virtual Freedom Run sponsorships, competitions, and participation are still live! Link below, email [email protected], or text 808-528-3058.

https://secure.qgiv.com/event/freer202/

#FreedomFromSeizures #FreedomRunHawaii #EpilepsyHawaii #Epilepsy808 #endepilepsytogether

Photosensitive epilepsy is more common in children and adolescents, especially those with generalized epilepsy and with ...
07/09/2020

Photosensitive epilepsy is more common in children and adolescents, especially those with generalized epilepsy and with certain epilepsy syndromes. Here are some general tips when you are spending time in front of the screen. Learn more about photosensitivity and seizures: https://bit.ly/2gHUPU0 Posted for #NationalVideogameDay 💜 #EpilepsyHawaii #epilepsy808 #ialohasomeonelivingwithepilepsy💜

Repost from our fierce epilepsy and healthcare advocate, volunteer, and do all #epilepsywarrior Maureen walking for #sei...
07/09/2020

Repost from our fierce epilepsy and healthcare advocate, volunteer, and do all #epilepsywarrior Maureen walking for #seizurefreedom with her husband, wearing purple, flashing our comfortable moisture-wicking EFH visor, and a prior year #freedomrun shirt and hat. Go Team Mighty Mo!

Went for 1 hour 30 minute #FreedomRunHawaii walk tonight! @explosion56 was decked out with his Freedom Run shirt and hat, and I had my @epilepsyhawaii visor! It really is my favorite visor.
#IAlohaSomeoneLivingWithEpilepsy #EpilepsyHawaii #epilepsy808

Today we remember Cameron Boyce, who passed one year ago today from sudden unexpected death in epilepsy (SUDEP). In part...
07/06/2020

Today we remember Cameron Boyce, who passed one year ago today from sudden unexpected death in epilepsy (SUDEP). In partnership with @thecameronboycefoundation, we established @knowsudepnow, an initiative dedicated to ending SUDEP. Please join us in our mission to honor Cameron’s incredible legacy, as well as the lives of others lost to this disease, and #EndSUDEP by donating to #kNOSUDEPNow, and learn more by visiting knowsudepnow.org. Photo by @StormShoots

07/05/2020

In honor of this year's 2020 Freedom Run/Walk from Epilepsy, we asked a few people why seizure freedom is important to them. This is what they had to say. Enjoy.

Our AWESOME emcee, Maureen,  is ready for the virtual Freedom Run from Epilepsy! She is definitely in the running for th...
07/04/2020

Our AWESOME emcee, Maureen, is ready for the virtual Freedom Run from Epilepsy! She is definitely in the running for the most purple prize! Hope you join us in celebrating #SeizureFreedom Repost from @auntymomoore

Think I'm ready for the @epilepsyhawaii Virtual Freedom Run pep rally? I'll be emceeing the event at 9am HST on 7/4! About 9 hours from now! #epilepsyhawaii #epilepsy808 #IAlohaSomeoneLivingWithEpilepsy #FreedomRunHawaii
#epilepsyhawaii

ONE YEAR SEIZURE FREE!!!Athletes vs. Epilepsy and Epilepsy Foundation of Hawaii volunteer, Spenser Jaye is celebrating o...
07/03/2020

ONE YEAR SEIZURE FREE!!!

Athletes vs. Epilepsy and Epilepsy Foundation of Hawaii volunteer, Spenser Jaye is celebrating one year of #SeizureFreedom today! Thank you Spenser for spreading epilepsy awareness in our community and being a sparkler of hope and resiliency to us all. 💜

The Virtual Freedom Run/Walk is on for tomorrow, July 4th and there’s still time to register and join us for more celebrating 🥳 of seizure freedom!

https://secure.qgiv.com/event/freer202/register/

#FreedomFromEpilepsy #FreedomFromSeizures #FreedomRunHawaii
#EpilepsyHawaii #Epilepsy808
#ialohasomeonelivingwithepilepsy💜

07/02/2020

The crew at Hawaii Pacific Neuroscience are 'all hands in' ready to celebrate #FreedomFromSeizures with us during the virtual #FreedomRunHawaii celebration this Saturday! They've made signs, orchestrated dances and boomerangs, held a mini parade and an Aloha Friday potluck to generate support; cheering on their patients and caregivers living with epilepsy and bring awareness to not only the Freedom Run event, but to highlight the Epilepsy Foundation of Hawaii, our programs, services, and resources for our epilepsy community here in Hawaii.

#LetsUseOurBrainsToEndEpilepsy
#FreedomFromEpilepsy
#EndEpilepsyTogether
#EpilepsyHawaii #Epilepsy808
#IAlohaSomeoneLivingWithEpilepsy

07/02/2020

The crew at Hawaii Pacific Neuroscience are 'all hands in' ready to celebrate #FreedomFromSeizures with us during the virtual #FreedomRunHawaii celebration this Saturday! They've made signs, orchestrated dances and boomerangs, held a mini parade and an Aloha Friday potluck to generate support; cheering on their patients and caregivers living with epilepsy and bring awareness to not only the Freedom Run event, but to highlight the Epilepsy Foundation of Hawaii, our programs, services, and resources for our epilepsy community here in Hawaii. #Mahalo

Register for the Freedom Run here: https://secure.qgiv.com/event/freer202/

#LetsUseOurBrainsToEndEpilepsy
#FreedomFromEpilepsy
#EndEpilepsyTogether
#EpilepsyHawaii #Epilepsy808
#IAlohaSomeoneLivingWithEpilepsy

Mahalo nui loa to Territorial Savings Bank for supporting EFH and the Freedom Run/Walk from Epilepsy over the many years...
07/02/2020

Mahalo nui loa to Territorial Savings Bank for supporting EFH and the Freedom Run/Walk from Epilepsy over the many years this event has taken place. Even in the midst of a global pandemic, TSB is able to stick by our side and support our mission here in Hawaii as they always have.

Join us this Saturday, July 4th, and celebrate #SeizureFreedom with us. Register here: https://secure.qgiv.com/event/freer202/

#FreedomFromSeizures
#FreedomRunHawaii
#EpilepsyHawaii #Epilepsy808
#ialohasomeonelivingwithepilepsy💜

The Virtual Freedom Run is this Saturday! Register (link in bio) to celebrate with us! Send in photos, videos, activitie...
07/01/2020

The Virtual Freedom Run is this Saturday! Register (link in bio) to celebrate with us! Send in photos, videos, activities of what you do to celebrate seizure freedom. We want to celebrate with you!

#FreedumFromSeizures
#FreedomRunHawaii
#EpilepsyHawaii #Epilepsy808
#IAlohaSomeoneLivingWithEpilepsy

Mahalo to Hawaii Pacific Neuroscience for sponsoring the Freedom Run! We want to send out a huge shout out to Dr. Liow a...
06/26/2020

Mahalo to Hawaii Pacific Neuroscience for sponsoring the Freedom Run! We want to send out a huge shout out to Dr. Liow and the crew at HPN for actively taking part in the Freedom Run each year: volunteering to set up, working a refreshment station, doing brain games with participants before, during, after the walk/run, cleaning up, and always willing to partner in our events. We truly appreciate all that you do for your patients living with epilepsy along with the arduous work and research currently being done here in Hawaii for future treatment of seizures.

#FreedumFromSeizures
#FreedomRunHawaii
#EpilepsyHawaii #Epilepsy808
#IAlohaSomeoneLivingWithEpilepsy #hawaiipacificneuroscience

Mahalo UCB for sponsoring the Freedom Run! Thank you for always being an active ear in Hawaii's epilepsy community and f...
06/26/2020

Mahalo UCB for sponsoring the Freedom Run! Thank you for always being an active ear in Hawaii's epilepsy community and for supporting EFH's initiatives and mission to meet the needs of people living with epilepsy in our community.

#FreedumFromSeizures
#FreedomRunHawaii
#EpilepsyHawaii #Epilepsy808
#IAlohaSomeoneLivingWithEpilepsy
#Inspiredbypatients #Drivenbyscience
#nayzilam #briviact #vimpat

Knowing how to help someone during a seizure can make a difference & save a life. We're offering virtual and free seizur...
06/26/2020

Knowing how to help someone during a seizure can make a difference & save a life. We're offering virtual and free seizure first aid certification training for anyone who wants to learn how to recognize signs of a seizure, respond with proper #SeizureFirstAid & know when to call for help.
Register now: epilepsy.com/FirstAid

#StaySafeSide #EndEpilepsy #EpilepsyHawaii #Epilepsy808 #ialohasomeonelivingwithepilepsy💜

Our mission is to improve the lives of all people living with epilepsy and that means addressing health disparities. Thi...
06/19/2020

Our mission is to improve the lives of all people living with epilepsy and that means addressing health disparities. This includes taking on the systemic racism that is part of our medical institutions and systems. These factors create disparities in things like hospitalization rates and emergency room visits, lower rates of surgery, higher rates of non-adherence, and early mortality.

The Epilepsy Learning Health System (ELHS) will address these challenges by collecting data about Social Determinants of Health, making our network more diverse, and creating interventions to improve health equity. And we won't stop until we get there.

Repost from @epilepsyfdn


Learn more about the ELHS: http://bit.ly/2IsEpPA

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200 N.Vineyard Blvd. Suite B259
Honolulu, HI
96817

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Comments

Is there going to be a Sharon’s Ride/Run/Walk this year? I haven’t seen anything posted about it. 🤷🏻‍♀️
Hi, I wanted to find out information about a specific weight loss supplement I was reading about called Body Mint. I’m currently taking Lamictal for Epilepsy & I was wondering if the Body Mint would mess with the Lamictal.
im a little afraid to post this video but i need answers as to what can be done to help with the seizures my name is Kailey i am 25 yrs old
Mailed a copy of my book to Your foundation, today! 🌺😊 #Epilepsy #braintumorsurvivor
Welcome to the Qgiv family! We’re so excited to watch you grow with us and continue making a beautiful impact in the world! #teamqgiv
Hi everyone! I wanted to share the news with you that I made an appearance on the news and got to open up about my life story and book. Here’s the link: https://gooddaysacramento.cbslocal.com/video/4040002-sierra-crislip/ Please check it out 💕
>>So the result of all of this was that I ignored the signs and experienced a whole round of seizures, had an emotional meltdown, and struggled, yet again, with the issue of whether this was really happening to me. In retrospect, there are a few things I could have prevented.
Just signed up for this most excellent event....signed the whole family up!
Governor Ige proclaims November is Epilepsy Awareness Month! https://flic.kr/s/aHsm7sA96t