Oklahoma Lyme Disease Support Group

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Edmond, OK
Oklahoma Lyme Disease Support Group

Providing support and information for those suffer from Lyme Disease in Oklahoma. All volunteer, Free mbrship, & open to public. Please call/email for info

Lyme Disease Support Group (LDSG) of Oklahoma is an informal group led by volunteers for the purpose of providing education, public awareness, and advocating for those suffering from Lyme Disease/STARI and other tick-borne bacterial infections. Our mission is to eliminate the isolation felt by those affected, empower members through information and support, exchange experiences and coping skills,

and assist family and friends of patients. LDSG interacts with federal and state agencies, medical schools, health care communities, research centers and educational venues, national organizations and foundations; and participates in public policy and legislative efforts, insurance and government assistance issues. Although ‘Lyme’ is prominent in the name, LDSG has expanded to include those suffering from STARI (Masters Disease), Babeiosis, Bartonella, Ehrlichiosis, RMSF, and other tick-borne illnesses (TBI). Several of the LDSG members have contracted at least one of these TBIs as co-infections in addition to their Lyme. Approximately 80% of LDSG members have developed more advanced and complex cases of Lyme Disease including Neuro-Borreliosis (affecting the brain and central nervous system) due to the prolong period they went undiagnosed and/or didn’t receive appropriate treatment. You are also welcome to join us on our Facebook group page at https://www.facebook.com/groups/okldsg/

05/25/2026

For those that missed it the 1st time around - "60 Minutes" TV News show is re-airing the 12min story covering genetically engineered mice and Lyme disease on Sunday Night May 24, 2026 (originally aired September 21, 2025). Titled "Sculpting Evolution," the segment reports on MIT researchers attempting to stop the spread of Lyme disease by releasing genetically altered, Lyme-immune wild mice on Nantucket. Segment is also available on YouTube:

Scientists are hoping to use genetic engineering to reduce the transmission of Lyme disease. The scientists' target is not the deer or the ticks often associ...

05/13/2026

Webinar on 2026May12:

Dr. Horowitz speaks on the topic of "Healing Chronic Illness/Tick-borne Diseases and Preventing Future Cognitive Decline."
The presentation was streamed live on the lymedisease.org page and is available to view at:
http://lymedisease.org/

The event was co-sponsored by four Lyme patient organizations:
• LymeDisease.org,
• Colorado Tick-Borne Disease Awareness Association,
• Greater Kansas City Lyme Association, and the
• Minnesota Lyme Association.

LymeDisease.org's mission is to prevent Lyme disease, prevent early Lyme disease from becoming chronic and to obtain access to care for patients with chronic Lyme disease.

01/17/2026

For those that haven't heard, LymeDisease.Org announced today three remarkable individuals in our Lyme Medical & Research community — Dr. Alan MacDonald, Dr. Alex Shikhman, and Dr. Charles Crist--have passed away. I don't have any further details. To read more about their backgrounds & contributions of these dedicated individuals go to:
Dr. Crist, MO - https://www.lymedisease.org/charles-crist-obit/
Dr. MacDonald, - https://www.lymedisease.org/in-memory-dr-alan-macdonald/
Dr. Alex Shikhman, CA
https://www.lymedisease.org/dr-alex-shikhman/

LymeDisease.org is a 501(c)(3) nonprofit organization dedicated to empowering the Lyme disease community & a wonderful resource. Learn more at www.lymedisease.org.

LymeDisease.org's mission is to prevent Lyme disease, prevent early Lyme disease from becoming chronic and to obtain access to care for patients with chronic Lyme disease.

12/15/2025

★ ALERT ★ ~ The U.S. Department of Health and Human Services (HHS) has announced a roundtable discussion titled "Invisible Illness — Leading the Way with Lyme Disease", scheduled for TODAY - December 15, from 1:00p-3:30p CST)
(2:00–4:30 PM EST / 11:00 AM–1:30 PM PT/Pacific).

The event will be broadcast live to the public on the HHS YouTube channel:

https://www.youtube.com//streams

The session will be convened by Secretary Robert F. Kennedy Jr., along with senior HHS leadership, Members of Congress, clinicians, researchers, innovators, and patient advocates.

The roundtable will focus on several topics, including:

• Early detection of Lyme disease
• Coordinated care approaches
• Next-generation diagnostic tools
• Federal priorities for Lyme disease and related chronic conditions
• Organizers note that the conversation will highlight the roles of researchers, transparency in decision-making, and patient participation in shaping solutions.

SOURCE: US Department of Health and Human Services

12/08/2025

For those of you that didn't catch 60 Minutes TV Show from last week... a group of VERY SMART high school students competed in the annual international IGEM. Why do we care - they may find answers & solutions Lyme/TBI scientists worldwide have been chasing for decades. Their project involved using CRISPER to detect Lyme (Bb & it's effects on protein) within 2 days of bite/infection; PLUS they believe their work will not only allow for quicker treatment but also development of better treatment for those patients that went undiagnosed for decades possible. The 60Min Story is more about the kids & the IGEM completion BUT it's still brings attention to LD & their discoveries will be Game-changers for us. Their group was nominated for 10 different awards & won 1st for their "website"....

Student Group - Lambert-GA https://share.google/gudasZFyhEhRx6pmq

60 Mins Show segment: https://share.google/JALd93SbaVwyxo3GD

LD Org has also written an article regarding the Students, IGEM, & what it means for us....

https://www.lymedisease.org/georgia-teens-crispr/

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Edmond, OK

Website

http://www.ldsg.org/

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